Read more about the article Why I’m worried about Gavin today
Gavin / IVIG Infusion / My thoughts / Schizophrenia

Why I’m worried about Gavin today

It started out like a typical Monday morning. It wasn't anything amazingly awesome, or horrifically terrible. The boys were tough to get moving but we got to school on time.  After dropping the boys off at school, I told Gavin to get his infusion supplies together. Every Monday and Friday morning, Gavin receives his IVIG infusion to treat his severely compromised immune system.  Typically, Gavin's very anxious to get this done because he he feels better once it's done.  Today however, Gavin essentially refused his IVIG infusion because he had a mission to go on, and he didn't want to go into battle with needles in his stomach. I can understand that, but he's never done that before.  I haven't yet learned the details of this particular mission or how…

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May 22, 2017
Read more about the article Watch Emmett’s Martial Arts Promotion in less than 1 minute
Emmett John / Martial Arts Promotion / My thoughts

Watch Emmett’s Martial Arts Promotion in less than 1 minute

Last Friday, both Elliott and Emmett had Martial Arts Promotion at school. I've got pictures and video of both. The boys did awesome, and we couldn't be any prouder of them.  The video below, summarizes Emmett's promotion. Elliott will have his own post as well.  Mr. Emmett was promoted to yellow belt, and demonstrated three katas in front of everyone. He was the only one to do this. Please take a second and view the video below. It's less than one minute long, Family friendly and will nicely summarize the promotion... ☺  https://youtu.be/8F1FC_Gk5mc

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May 22, 2017
Read more about the article How we calm our ferrets so their nails can be trimmed
There's a trip to trimming a ferrets nails, and it's called distraction. By letting them lick the tube of Furo-Vita, a ferret vitamin supplement, occupies them enough that you can safely trim their nails..
Charlie / Family Pets / Ferrets / My thoughts / Photography

How we calm our ferrets so their nails can be trimmed

There's a trick to trimming a ferrets nails, and it's called distraction. We have to do with with our ferrets every two weeks or so. If we didn't, their nails get like a raptors talons and can accidentally do so damage, or cause injury. By letting them lick the tube of Furo-Vita, a ferret vitamin supplement, occupies them enough that you can safely trim their nails.. ☺ https://youtu.be/V6ODf-ATQTk

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May 22, 2017
Read more about the article Our pseudo service ferret family
This is Charlie. He's the youngest of our ferret family, but also the biggest as well. He loves snuggling and falling asleep in his humans. Our kids with #Autism, benefit tremendously from having the ferrets around. Do you have animals in your life that make an impact on your family?
Charlie / Family Pets / Ferrets / Photography

Our pseudo service ferret family

Something you may or may not know about me is that I'm a closet photographer... Taking pictures of the things or events going on in our life is something I truly enjoy doing.  This is a picture of Charlie. He the youngest, and yet largest of member of our ferret family.  The three of the boys absolutely adore our ferret family and the ferrets adore the kids as well. They love snuggling and helping the boys to feel better when they are overwhelmed or overstimulated. They're pseudo service animals and over the last two years, have been a hugely positive addition to our family. 

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May 22, 2017
Read more about the article Our disappointing trip to @ChuckECheeses 
My thoughts

Our disappointing trip to @ChuckECheeses 

If you've followed our story, you know that we are very clearly not made of money. Things are getting better every month, but it's still a struggle sometimes. Regardless of the financial challenges, I've decided to make a concerted effort to spend more one on one time with each of my kids. On May 16th, 2017, I took Elliott to Chuck E Cheeses for our one on one time. It's what he wanted to do and they had a pretty good deal going on. We went to the location at The Strip, in North Canton, Ohio. We were both pretty excited, and I was happy to be in a position to pull this off for him. The deal we took advantage of was $31.00. This deal included a large pizza, two…

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May 21, 2017
Read more about the article Please keep Elliott in your thoughts and prayers 
Elliott / My thoughts / Thoughts and Prayers

Please keep Elliott in your thoughts and prayers 

The boys came home for their Grandparents house, after a fun overnight visit. When Elliott walked in the door, I knew something was wrong when I say his face.  He looked pale and somewhat disoriented.  He kept saying he was okay, but it wasn't very convincing. I gave him a little bit to settle in and then I took his temperature. Unfortunately, my instincts we right and he was running a relatively high fever.  Both he and Emmett went to bed without a problem.  After a few hours, he woke up and came downstairs because he couldn't go back to sleep. He and I ended up camping out in the living room, because he was more comfortable in the couch.  The other benefit is that if he were to get…

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May 21, 2017
Read more about the article Emmett’s school year might be cut short
Emmett John / My thoughts / PFAPA

Emmett’s school year might be cut short

We received a call from Lizze's Mom because Emmett was complaining of a sore throat. I think he was possibly looking to come home, but they were able to redirect him and he decided to stay, from what I understand.  For the last few days, I've been monitoring his temperature. I have a bad feeling, and I think he may be hitting another fever cycle. His joints have been hot and he's been acting a little funny.  If he is entering into a new fever cycle, he will very likely miss the rest of the school year.  I'm concerned because if this does prove true, these cycles are very close together, and the sore throat is a new symptom.  I'm really hoping that he feels better in the morning... 

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May 20, 2017