We received some bad news 

In what seems like a cruel twist of fate, insurance has decided to discontinue coverage for Lizze's outpatient therapy classes.  These are a series of three different classes that span a total of about six months or so. They are designed to help people dealing with things like PTSD, Bipolar Disorder, and more extreme challenges like Borderline Personality Disorder.  Before she was able to begin the very first class earlier this year, insurance had to approve everything, and they did. They agreed to cover all three classes and so we proceeded with the therapy.  She made it through the first class, and about half of the second one when out of nowhere, insurance pulled the plug and the funding.  We've been unable to secure a reason for this sudden and…

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Guess who’s birthday it is

I want to take a minute and share that today is Lizze's birthday. We sorta celebrated last night with cake, but I want to take her out to dinner as soon as I get paid.  While I won't share her age, she's younger than me. ☺  I think this is the sixteenth birthday I've had the honor of celebrating with her. We've been together for almost our entire adult lives and it never gets old.  We've been through a great deal, survived and lived to celebrate another birthday together. ♥  Happy Birthday Lizze... ☺ 

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So here’s how Gavin’s doing

Gavin seems to be feeling okay today. That's obviously good news, because he had a rough night, as I said earlier. He's currently sleeping, but that's likely just his morning meds.  We're taking it easy this afternoon but plan on walking as the sun becomes a little more skin friendly.  Hopefully, Gavin will wake up still feeling okay, and will be up to going to the park. I don't like to push him too hard, because his body is inherently unstable. He's been doing pretty good for the last couple of years, but it only takes one time. 

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It’s things like this that make communication challenging 

Gavin had a weird night last night. Right after dinner, I got Gavin's IVIG infusion going. The weirdness started when he decided to stop eating dinner because he thought he might get reflux if he finished it. He was afraid that if he ended up with reflux, he wouldn't be able to get his infusion tonight and would have to wait until today. I didn't argue with him because whatever... It's not worth it. Gavin's right in the sense that I wouldn't delay his infusion if he were dealing with reflux. The infusion is hard enough on his body and if something happens during or after the infusion, I need to know that he was okay prior to beginning. Does that make sense? Maybe five minutes after getting the infusion…

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Emmett took the lead, and the cart

Yesterday, after all the OT fun, I took the family to the park. While we were there, a nice lady offered to take our picture for us. That was super nice of her. ☺ After we got done exploring the Garden Center, it was time to hit the grocery store and pick up Lizze's birthday cake. Emmett took the lead, and the cart while we were shopping. He did a nice job of pushing the cart, and there were no causalities.. lol

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From disaster to happy ending

Elliott had his occupational therapy re-evaluation yesterday. When it was time to go, he freaked out because it cut into his routine. Once I physically got him there, he was okay. For the most part, Elliott did really well. There are a few things he's struggling with, and they may refer him to physical therapy, as it may be a better fit. There's obviously sensory issues that OT would benefit, but his tests have to be scored and a plan put together. They will be calling me with his first appointment in the near future. As it stands, it looks like he will go to OT once a week for awhile, and we'll see how things go. If he reaches his goals, he may be moved to PT instead. PT…

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I’ll just leave this update here

It's been a really long day, not to mention, exhausting. This is the first time I'm had the time or the energy to write anything since yesterday. Sometimes I have those days where it just seems like everything goes wrong, even though there were some definite blessing tossed into the mix. I don't know about you, but it's harder to see the positive on a bad day, than see the negative on a positive day. Maybe that doesn't make any sense. It did in my head, so I'll just leave it there. ☺ There's a few things I need to update you on and I'm working on it. I want to share how Elliott's appointment with OT went, as well as some updates on Gavin, and Lizze. Those will probably…

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An unbelievably difficult afternoon 

It's been a mixed bag this afternoon. Everyone is glad Mommy is home, but it's also been a long weekend. Elliott's doing well, but Emmett is really struggling. I'm fairly certain that Emmett is entering into a fever cycle. I've been tracking his temperature over the last few days and it's been mostly 99°F or higher. That's not technically a fever but it is indicative of a fever cycle, along with inflamed joints. He's been unbelievably difficult this afternoon. He's overreacting to everything, melting down as a result, and driving me crazy. The poor kid is miserable, and there isn't anything we can do aside from extending an insane amount of patience his way. On a positive note, Nokia Health sent me something pretty amazing, and it's been a huge…

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