My kids with #Autism never fell asleep last night

It's been the longest night ever, well at least recently anyway. For the second night in a row, Elliott hasn't slept. Monday going into Tuesday, I think he got about two hours and that's it. He did okay at school the following day but last night was really rough. This time however, Emmett was awake to join him. Elliott never went to bed but Emmett woke up from a nightmare and was too afraid to go back to sleep. When 7 AM rolled around this morning, they were both so exhausted that there was no way we could send them to school. They would be setup to fail and that's not the right move. Both boys went to bed and are currently sleeping. Our goal is for them to make…

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Life is NOT easy be we have a great deal to be thankful for

The boys had a pretty good day. They got off to school without much problem. I was pleasantly surprised because Elliott only had a couple hours of sleep. He's been struggling to sleep the last couple nights and we may have to speak with his pediatrician for advice because Melatonin isn't helping. I went back to bed cause I wasn't feeling well, still due to the whole Paxil thing but I felt better when I woke up and was able to get quite a bit accomplished. One of the things I'm really struggling with is taking in enough water, especially since herthis whole Paxil thing. I'm making a concerted effort to fix that but the nausea is pretty rough at times and I don't want to think about eating or…

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I desperately need to vent

This is one of those posts where I will completely open up and share things that are going on in my life that have me feeling the way I'm feel this morning. This is only meant to provide insight and context. These are just some of the many things weighing on me thus morning. I'm just venting and I haven't even proofed the post. Please forgive the wordy mess but it needed to come out. I woke up this morning feeling nauseated again because that's been the status quo for the most part since taking my last dose of Paxil almost a month ago now. The journey to get off of Paxil has been horrible and took over ninety days to complete. I learned the hard way, just how horrible…

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Shipping the kids off tonight

The boys has a meds check this morning at their pediatrician. They were a bit of a handful but considering we were there for a total of two hours, I think they actually did quite awesome. ☺ Everything checks out with the boys and meds were refilled. Both Elliott and Emmett's idiopathic fevers were once again documented. There's nothing we can do about them but documentation is very important. As for the rest of the day, I have a few errands to run before the boys leave to spend the night at my parents house. If all goes as planned, we will have the first night off, since our trip to Florida. I think that's right. Either way, it's been forever and we desperately need it. For awhile now, at…

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This is what happened at Emmett’s doctors appointment

I was reminded this morning that I never updated y'all on how Emmett's doctors appointment went on Tuesday. I'm still having bad days so things are slipping through the cracks and this was one of them. Anyway, on to the update. Emmett's been dealing with chronic tummyaches for a very long time. We've had him seen countless times, just to be sure all was okay, and it always is. That being said, the tummy aches are real and they're causing him to miss school. The down and dirty is that there aren't any obvious issues. He is scheduled to see his Gastroenterologist in late April but until then, we are trying a few things. One big thing we're doing is increasing his intake of water. Dehydration can easily cause complications…

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Hopefully this is a step in the right direction

Emmett didn't make it to school today again, because he's not feeling well. I've been running around this morning but I've got a minute to publish an update before I go walking. Elliott got to school on time and without issue. Gavin's bloodwork was drawn and we are waiting for his numbers to come back. I'm unsure of where we stand in regards to his numbers right now, so I'm a bit nervous for those results. Gavin's becoming increasingly frustrating to work with on his IVIG infusions because he wants things done a certain way but unfortunately, it doesn't work like that. There's some flexibility within the IVIG infusion process but there are fundamental parts that include zero amounts of wiggles room. That being said, once his infusion was started,…

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Yes, I know hate is a strong word

It's been a long day and it started super early. I'm talking 4 AM early. Emmett is once again going through a difficult period of time at night and is waking up from really bad nightmares. He runs into our bed and glues himself to me. We have a king size bed but Emmett likes to take up most of it. Putting him back in bed is an exercise in futility because he's too afraid to go back to sleep. Rather than fight that losing battle, I simply move downstairs to the couch. This way Lizze sleeps, he sleeps and I have a chance at getting some sleep as well. The best approach in this particular situation, especially when Emmett's concerned, is to address the underlying issue. The nightmares are…

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