Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies.  Let's get this out of the way first.  Gavin's doctor's office was finally able to get things straightened out with our current supplier. The supplier appears to be who dropped the ball on this one.  Setting aside blame and focusing on what matters most at this very moment. I can share that Gavin's medications have been reordered. They should be arriving on Wednesday.  How am I going to prevent this from happening again?  The simple solution to fix this is going to be complicated…

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He’s driving me f@#king crazy today

Let me start things off by reminding everyone how much I love my kids.  I've got tons of new readers and I just want to be clear on that because of the tone of this post. That said, and with my profession of unconditional love for my children, here's the deal. They are driving me fucking crazy. More specifically, Gavin’s driving me fucking crazy. The other two are actually doing okay today. Gavin is having a really tough day, in several areas of his life. Veteran readers will probably already guess that a large part of this is in regards to his constant, incessant need to talk to me. No one has this much to say and neither does Gavin for that matter. He's just talking about totally random things…

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Bad News news to share about Gavin

I've been putting off a really important update recently because I'm still processing some of it, at least I'm trying to. During our last meeting (this past Tuesday) with Dr. Pattie, Gavin did another mission debriefing. This debriefing was a little different because we learned something new about the status of his current psychosis. After talking about all the adventures he had gone on since the last debriefing, I began asking him questions about what he was saying, in an attempt gain a bit more insight. These questions led to a much better understanding of where he currently resides, psychologically and emotionally. It turns out that Gavin's hallucinations are actually getting worse. There used to be a portal he had to walk through in order to be transferred from his…

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When my kids have a great day at school

The boys had a great day at school today. That's not a huge surprise, but I never assume anything. I appreciate this ending to the week because we are heading into four day weekend and it's always a good thing to start those out on the right foot. Apparently, tomorrow is a teacher in-service day and then, of course; Monday is MLK Day. I'm super proud of the boys for giving the week their all and walking away with a smile. We don't have any plans for this weekend, but the boys are going to spend the night with their grandparents tomorrow night. That means we get a break. :-)

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Are #Autism Parents Overprotective? 

Being a parent period, is a difficult but rewarding task. When you're an Autism or Special Needs parent, that difficulty level is increased to the nth degree as is the reward factor. Raising a child with a developmental disorder like Autism, is extremely difficult because of the very nature of the disorder. Autism is a very dynamic condition and often presents in a very fluid manner. This means that everything involving the parenting of a child with Autism can more often than not be a moving target. In my personal experience with my three boys on the Autism Spectrum, something that works today, may never work again. Likewise, something that's never worked before, could actually work today. Every single day that I wake up, I honestly have no idea what…

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OMG… He won’t stop talking O_o

I'm so tired and Gavin just won't stop talking. Look, I'm so grateful that all my kids are verbal and I know how hard it can be when they aren't because Emmett was nonverbal until he was almost four or five years old. We were told he would never talk, so to at least some degree, I get it. Gavin is one of those bipolar kids that talk incessantly when they are manic. My God, this kid hasn't stopped talking today. He'll disappear to his room for a bit and I get a reprieve but when he comes back, and he always comes back, he's got all this stuff pinned up and then unleashes a flurry of scattered thoughts at me. He's in the kitchen right now making a sandwich.…

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You won’t be surprised to hear this

I know you're going to be shocked but I'm exhausted this morning.  Poor Elliott was up all night with a really bad headache. Mr. Elliott woke me up about 1:30 am because his head hurt so bad that he was crying. Rather than risk waking up Emmett, I brought him downstairs, got him some Morin and made him comfortable on the couch. It took some time to get him back to sleep up it did finally happen. I'm so glad he was able to fall asleep and I was able to comfort him. The downside is that I lost a tremendous amount of sleep as a result. The boys got off to school without much problem. Now I can try and grab a nap because if I don't, I can't…

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It’s easy to underestimate the impact a meltdown can have on a parent

This morning took so much out of me that for the first time in awhile, I crashed after dropping the boys off at school. I did get some writing done prior but I was just no longer able to function and needed sleep. I feel much better now, although I'm still tired. It's pretty easy to underestimate how much a morning full of meltdowns can impact a parent. The amount of emotional and physical energy expended is immeasurable. On the positive side of things, once Emmett works through the sensory issues in the morning, he seems to recover much faster than I do and has a good day at school. Truthfully, if given the choice, this is how I would want it to go. Experiencing a sensory issue like Emmett…

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