A few reasons why I’m so proud of my kids today

Both Elliott and Emmett were in rare form today. I definitely had my moments where I thought I was going to go crazy but I ended up pulling through just fine. Perhaps a few more grey hairs but that's sorta par for the course. 😁  I do want to say that I'm super proud of both Elliott and Emmett because they came home from school and tackled their homework. Not having to fight the homework battle, especially with Elliott, is always a positive thing. I never take these types of moment for granted because you never know when they're going to arrive.  Elliott and Emmett even played nice today, except for Emmett kicking Elliott in the testicle. That wasn't nice and we had a talk about that.  Lizze put the…

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I’m not sure how I’m doing in regards to my Depression and here’s why

I wanted to put out a brief update on how my tumultuous relationship with Depression is going.  In case you've not read any of my past posts on depression, I'll sum it up for you. Depression fucking sucks and unless you're living with it, comprehending it's impact in a truly meaningful way, is not easy.  That's pretty much the status quo for anything, not just Depression. It's tough to understand without first hand knowledge.  My war with Depression has been going on since my early teens. I go to therapy, take my meds and see my doctor whenever I feel changes have to be made.  Lately, I've been doing okay, but not great, at least as far as I'm concerned. I'm not always the best judge of this because I'm…

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The heartbreaking reality of sensory processing disorder (video) 

I've been talking about sensory issues in regards to my kids for years. The story always seems to revolve around shoes, socks, and school, especially in Emmett's case. Almost every single morning, we spend upwards of an hour or more, trying to help Emmett tolerate his shoes and socks. There are times that we succeed in overcoming these obstacles and there are days in which we don't even come close. The examples I've given have mostly revolved around Emmett missing school because he can't tolerate his shoes and socks. No matter how many times I've tried to explain that Emmett's not trying to get out of going to school, there's always that doubt in people's mind because it seems like getting to stay home is his ultimate goal. As I've…

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Guess what we’re doing tonight

Elliott had a great day at school today. I picked him up this afternoon and we went to the grocery store because we needed to get his birthday cake. He wanted to pick it out and we didn't have a problem with that.  He was a big help with the rest of the groceries as well. ☺  On the way home, we ordered and picked up Chinese for his birthday dinner. Lizze and I wanted to take the boys to a movie tonight but no one wanted to go and Elliott wanted to stay home and play with his birthday presents.  We decided to celebrate his birthday today, at his request because his actual birthday is tomorrow but we're celebrating with the family on Sunday. It's better to split things…

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Gavin tried hopping out of a moving car today

I'm really struggling with Gavin today. He's been off since waking up this morning.  When I took him to get his bloodwork done, he totally freaked me out. I had just pulled into the parking lot and was pulling into a parking space. The car was still moving forward, when Gavin rips off his seat belt and tries hopping out of the car. WTF Gavin? I instinctively yelled at him because I needed to stop him from continuing to try and let himself out of a moving car.  He was very apologetic and I don't think he even realized what he was doing. He was so focused on getting his bloodwork done, everything else just faded away, including the fact that the car was still moving.  A guy can only…

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Once again, Sensory Processing issues interfere with life

These sensory issues are absolutely killing me as a parent and I'm not even the one having to physically experience them. I can't image what it's like for Emmett.  We tried and tried to help Emmett work through his sensitivity to anything on his feet but we were unable to make it happen this morning.  It's extremely frustrating for Lizze and I as parents because we know that he needs to be at school. It's even more frustrating for Emmett because he wants to be at school but his body is making that very, very difficult for him.  We were somewhat pressed for time this morning because we were already late, Elliott needed to get to school and Gavin needed to have his bloodwork done first thing.  The bottom line…

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General Update: The Good News and The Bad News

I've been spread pretty thin this week and I haven't written much at all. I'm trying to refocus a bit and get back into the habit but frankly, it seems overwhelming sometimes. I'll do my best to get back on track.  There are a few things that I'd like to update you on.  First and foremost, Elliott finally was able to fall asleep at his normal bedtime hour. The last four or five nights, he's really struggled to fall asleep and wasn't able to until well after midnight. Last night however, he never fell asleep and that's not a good thing.  I'm not sure what was different about tonight but he fell asleep without a problem. Lizze and I are both grateful for that.  Emmett's been Emmett. Shoes and socks…

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Why I withheld my son’s IVIG infusion this week  

I'm pretty sure I told you that Gavin's IVIG supplies were delivered on Wednesday. What I didn't explain was that we held off on giving it to him until Friday.  The reason behind that seemingly counterintuitive move was simple. By the time we could have given him his infusion on Wednesday, it would have been really late in the day. With his next scheduled infusion being essentially twenty four hours away, it was too close together.  If we had gone ahead with a Wednesday infusion, we would have had to push off the Friday infusion, thus fucking up the entire schedule as we worked to get things back on track.  By holding off and waiting until Friday, we were able to preserve the schedule and keep things from getting worse…

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