This is what happened at Emmett’s doctors appointment

I was reminded this morning that I never updated y'all on how Emmett's doctors appointment went on Tuesday. I'm still having bad days so things are slipping through the cracks and this was one of them. Anyway, on to the update. Emmett's been dealing with chronic tummyaches for a very long time. We've had him seen countless times, just to be sure all was okay, and it always is. That being said, the tummy aches are real and they're causing him to miss school. The down and dirty is that there aren't any obvious issues. He is scheduled to see his Gastroenterologist in late April but until then, we are trying a few things. One big thing we're doing is increasing his intake of water. Dehydration can easily cause complications…

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Hopefully this is a step in the right direction

Emmett didn't make it to school today again, because he's not feeling well. I've been running around this morning but I've got a minute to publish an update before I go walking. Elliott got to school on time and without issue. Gavin's bloodwork was drawn and we are waiting for his numbers to come back. I'm unsure of where we stand in regards to his numbers right now, so I'm a bit nervous for those results. Gavin's becoming increasingly frustrating to work with on his IVIG infusions because he wants things done a certain way but unfortunately, it doesn't work like that. There's some flexibility within the IVIG infusion process but there are fundamental parts that include zero amounts of wiggles room. That being said, once his infusion was started,…

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I’m really getting worried about Emmett

Lizze and I have been working with Emmett to help him fall asleep tonight. He's not feeling good again and hasn't been able to fall asleep. I'm getting worried about Emmett because he's really struggling with these tummy aches. His pediatrician has checked him out on many occasions but found nothing. I think it's time to return to his Gastroenterologist. He hasn't had to go back since his food allergies cleared up but I think it's a good direction to go in. Emmett wants to go to school today but he's clearly struggling. I think I'm going to get him back into see his pediatrician ASAP. I tried calling last night but I can't schedule something until the morning. I wish I knew how to help him but I don't.…

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A MASSIVE and IMPORTANT Update for the last couple of days

Hey folks. It's been a couple days since I've written anything other than an update on my tumultuous relationship with Paxil and there's a good reason for that. That good reason is, I'm fucking miserable. I'm anxious, stressed, emotional, not sleeping, nauseated and freaking out. None of this is really new information because it's the same side effects I've been struggling with since I took my last dose of Paxil, exactly one week ago today. Rather than focus on my current disparity, I want to catch everyone up on some of the things I've been meaning to write about but haven't, because of the stuff in the previous two paragraphs. School Related It was a shorter school week because of teacher in-service and end of the quarter stuff. The kids…

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Yes, I know hate is a strong word

It's been a long day and it started super early. I'm talking 4 AM early. Emmett is once again going through a difficult period of time at night and is waking up from really bad nightmares. He runs into our bed and glues himself to me. We have a king size bed but Emmett likes to take up most of it. Putting him back in bed is an exercise in futility because he's too afraid to go back to sleep. Rather than fight that losing battle, I simply move downstairs to the couch. This way Lizze sleeps, he sleeps and I have a chance at getting some sleep as well. The best approach in this particular situation, especially when Emmett's concerned, is to address the underlying issue. The nightmares are…

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The main way I’m coping with the stress of being an #Autism parent

One of the things I'm pushing myself to do right now is manage my stress in more natural ways. My life is so full of stress, there's times it hard to find room to breathe. What I'm trying to do is make the room for me to breathe and in doing so, give myself a better chance to cope with the things going in in my life. I always have things to worry about. Gavin's declining and thinking about where that is going to take us, scared the shit out of me. Emmett is dealing with this fever disorder, nightmares and whatever is causing these tummy aches. Elliott is an emotional train wreck right now. Autism, extreme anxiety and puberty are not being kind to him. Lizze is miserable most…

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Hopefully he’ll feeling better as the day moves forward

Emmett woke up about 4 AM with a tummy ache. He climbed into bed with us and snuggled me. I don't think he ever fell back asleep. It was pretty clear that he was miserable. There's a stomach bug going around the school but to be completely honest, this could also just be an Emmett thing. At the moment, Emmett is laying down in our bed resting. He's watching Netflix while he's buried in blankets and surrounded by pillows. He's not eating anything and that's another sign that somethings not right. Hopefully, he will feel better as the day moves forward.

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Dry air makes it so hard for me to sleep

I had a rough time sleeping last night. Majority of the problem was related to the air being so dry, it made me really stuffy and that always makes it hard for me to sleep. It's like a fricking desert. Around 2 AM I ended up downstairs on the couch. Its easier to breathe down there for some reason. I need to put the humidifier on the second floor because that should make a difference. I didn't end up fall asleep with Ruby curled up next to me. Thankfully, the boys are at Lizze's parents house, so I was able to sleep in. Gavin didn't need anything this morning and I wasn't disturbed. All we have to do today is take Lizze to the dentist, get stuff for the boys…

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