Bipolar Archives - Page 169 of 340

My #1 take away from today

I'm going to sum things up for today pretty quickly because I'm really tired and hope to actually sleep tonight. My number one take away from today is pretty straightforward but also very positive. I spoke with legal at Akron Children's Hospital and seem to think that gaining medical power of attorney will work. They need to double check a few things and they will get back to me. This is enormously positive news and while we don't know anything for sure, it sounds like it will all work out. ☺

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June 14, 2018

Autism Parenting Confessions / My thoughts

Do you ever feel so overwhelmed you can’t breathe?

As a Autism parent, my status quo is stressed out and overwhelmed. I think you'd be hard pressed to find an Autism parent who doesn't feel this way from time to time. It's important to understand that many of the things that we worry about on a daily basis as Autism Parents, are unique to Autism parents. That can make it harder for people to understand. Lately, I've had days where I'm so overwhelmed, stressed out and worried about things I have zero control over, it feels like I'm drowning. Other times it can feel like I'm being crushed under the weight of everything I have to carry each day. Getting up in the morning can be very difficult sometimes because I already know that today will be more of…

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June 14, 2018

Gavin / My thoughts

This 1 idea may solve our current guardianship difficulties

Gavin had therapy tonight and while some of the time was spent on Elliott, the rest of the time was spent on Gavin. There are a million things to worry about in regards to Gavin and it's impossible to take them all on at the same time. We have to triage everything and focus on what's most important in the moment. As of yesterday, the priority was getting guardianship over Gavin in order to continue taking care of him, as he's legally an adult. We were hit with the reality that we are going to need an attorney that we can't afford and I was feeling a great deal of stress as a result. That was a newly minted problem and we hadn't even begun to process it and we…

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June 14, 2018

Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / My thoughts

1 phone call has sent me into a complete panic

I wrote about frustrations and explanations for why guardianship hasn't been completed for Gavin. I was explaining how things keep coming up that force us to reprioritize everything. See: I'm going to need an attorney. Not twenty-four hours go by and we're slammed once again, with yet another potentially life threatening issue. I received two very early morning phone calls today. One of from the pharmacy responsible for managing Gavin's IVIG infusion supplies and the other was from his immunologist. Turns out that there is an ongoing, nationwide shortage of GAMMAGARD, the life-saving medication that consists of donated antibodies from thousands of people, used to provide Gavin with a temporary, functional immune system. Gavin has something called Common Variable Immunodeficiency, see What the Hell is Common Variable Immunodeficiency. In laymens…

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June 13, 2018

Autism Parenting Confessions / Gavin / My thoughts

I’m going to need an attorney

I spent the afternoon, going through the paperwork that needs to be finished up in order to file for guardianship of Gavin. I'm not sure Lizze and I can both be guardian's, as the paper only references one person or applicant. Maybe I'm wrong. I'll be very honest with you. While we haven't blown guardianship off by any means, it hasn't always been the number one priority either. When you're a special needs parent, there are always things that come up and we're forced to reprioritize. It's not that guardianship isn't important because it's extremely important but between other health related issues, both physical and emotional that pop up, there's only so much we can do. We've been in a slight holding pattern because we have to get paperwork back…

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June 12, 2018

Inspirational Posts / My thoughts

The main reason I make everyday a clean slate

It's no secret that I'm struggling at the moment. You can read 3 tell-tale signs I need help with my #Depression for details on why that is. I'm having a better day today, at least comparatively speaking and there are many reasons for that. I want to focus on the main one for right now. It's something my wife and I have instilled in our kids from a very young age. It's called a clean slate. No matter how bad of a day any of us are having today, tomorrow is a clean slate. The idea of a clean slate isn't meant to excuse poor behavior or bad decisions. It's not meant as a get out of jail free card either. In regards to our kids, we remind them every…

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June 12, 2018

Confessions / Depression Management / Inspirational Posts / My thoughts

3 tell-tale signs I need help with my #Depression

I've been very open in regards to my ongoing war with depression. I feel that the only way we can de-stigmatize things like depression or any other mental health illness, is to speak openly, honestly and without shame. It's with the continued spirit of honesty, that I share with you my current struggles with depresion. I'm not going to go into my past history with depression in this post right now because honestly, this is hard enough as it is. You can however, read for yourself. See My War with Depression. In a nutshell, I'm not doing well. There are a few things that tend to happen when depression is kicking my ass. It's always been that way. As problematic and disruptive as these things can be, it's sorta like…

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June 12, 2018

Autism Parenting Confessions / My thoughts

What it’s like when I don’t cope well

I'm feeling incredibly overwhelmed this morning and I'm not entirely sure why. I've been feeling anxious and like there's just too much going on for me to cope with. I honestly can say that it isn't just one thing that weighing on me, it's the totality of everything. On most days, I'm able to take things on, one or two at a time and cope. On days like today, I taking on everything at once and it's crushing. This isn't something I'm doing on purpose or even consciously but the impact on me is significant. I'm literally shaking as I write this because I can't seem to center myself and it's more than I'm able to adapt to at the moment. I need to remove myself from the game for…

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June 11, 2018