Autism Archives - Page 501 of 714

I could see the distress in his eyes and it broke my heart

I tried again tonight to get Emmett to fall asleep in his own bed but it didn't go well. Emmett will give us a reason for his not being able to fall asleep in his bed. We've heard things like his cat won't leave him alone, it's too dark, his bed is too high or he's afraid of his bad dreams. He mentioned to Lizze that he likes her really soft, fuzzy blanket and that's why he sleeps in our bed. While Lizze was away with her Mom tonight, I gave one of those blankets to Emmett and told him that we could try the blanket in his bed and if it works, we'll get him his own. That lasted all of ten minutes. He came downstairs and I could…

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August 21, 2016

Family Fun / Pokémon Go

We totally went Pokémon hunting because what else would we do

The boys and I went Pokémon hunting tonight. Gavin came with us but didn't want to play. We took a lap around the track and the boys caught a ton of Pokémon. We walked a total of roughly two miles and by we I mean everyone. I didn't have to carry Emmett at all. We had to take a few tiny breaks along the way but he did awesome, as did all the other boys. It was a lot of fun and this was a great motivation for the boys because they can hatch they Pokémon eggs by walking get a set distance. I got some exercise and so did the boys. It was a great ending to a decent day.. ☺

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August 20, 2016

My thoughts

I guess we’re going Pokémon hunting

Lizze is going out with her Mom tonight and the boys and I have the house to ourselves. The boys want to go hunting for Pokémon tonight and try and hatch some eggs by walking the track. I'm hoping this will Tucker them out before going to bed tonight. Wish me luck...

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August 20, 2016

Emmett John / My thoughts

Great News: Grocery shopping we did go

We were able to finally go grocery shopping today. It's not as much as we really needed but I'm grateful for what we were able to do.Emmett went with me because he wanted to go along and help. He also wanted to pick out hot chocolate and there's a story behind that. Last night, Elliott asked for hot chocolate and after he made it, Emmett decided that he wanted some as well. Unfortunately, as well as because that's just the way life goes for us, Elliott had used the last packet. Emmett, who'd already been struggling yesterday, lost it. He had a massive meltdown and the only thing that eventually calmed him down, was the idea of going to the store with me and picking out a new…

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August 20, 2016

My thoughts

It’s so hard to shutdown when you’re an #Autism parent

I'm laying in bed at 2:30am, unable to sleep and it's really frustrating. All I want to do during the day is just curl up in a ball on the floor and sleep but I can't. When I do get a chance to sleep, I lay here and can't shutdown. It should be said that for Autism parents, it can be extremely difficult to shutdown, even though they desperately want to sleep. That's something that I struggle with rather frequently myself. There's so much adrenaline being pumped through my body during the day because of this constant state of hyper-vigilance, it just takes its toll. For many of us as well, we sleep with one eye open and an ear to the ground because we can never…

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August 20, 2016

Gavin / IVIG Infusion / Thoughts and Prayers

Gavin had a bad reaction to his IVIG infusion tonight because apparently, life isn’t challenging enough already

As you know, Gavin receives IVIG infusions twice a week because he's living with a severely compromised immune system. The actual medication is called GAMMAGARD and it's basically made up of antibodies from many, many different donors. This replaces the defunct antibodies in Gavin's body, for a short period of time. He's been receiving these infusions for many years now and will continue for the rest of his life. Now we're all caught up and everyone is on the same page. Gavin received his IVIG infusion tonight and the infusion itself went well. The actual infusions themselves usually go well. Sometimes we hit some snags but that's really the exception to the rule. What happened tonight was a bad reaction. It happens on occasion but it hasn't happened in a…

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August 20, 2016

School

Are you ready for the new school year?

The boys go back to school on Wednesday. That's also my birthday, in case anyone's wondering. Talk about a birthday gift from above... ☺ While I'll miss my two youngest, I totally need the break because it will allow me to get back on track. I've got things to do and weight to lose. It all begins Wednesday. Are you ready for your kids to return to school? Do you have concerns about this transition?

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August 19, 2016

Autism Parenting Woes

Meltdowns, Bouncing and Think to Breathe Mode

OMG.... The boys are so hyper today and are literally bouncing off of any surface they can. Elliott didn't sleep much last night because his bed had been vandalized by Maggie. See the previous post for this crazy story and the video to prove it. The level of sensitive that Elliott possesses is such that he took it very personally, that Maggie picked his bed to pee on. He thought she was mad at him or something and just felt terrible. Anyway, he might be a little punch drunk right now from lack of sleep. Emmett's just all over the place today. He's happy then frustrated and angry. He sorta cycles through these emotional states but does so at a volume that is beyond that of an outside voice. Gavin…

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August 19, 2016