I’m not sure how today’s going to go 

We've got a busy morning ahead of us. The boys did not want to wake up and even after they did, it was like pulling teeth to get them moving.  I'm not looking forward to working with Emmett on his shoes and socks. Maybe everything will go smoothly and there won't be any problems. At this point, I'm just hoping to make it through the morning, with both kids in school.  It's time to get back into the frenzy..... 

0 Comments

The heartbreaking reality of sensory processing disorder (video) 

I've been talking about sensory issues in regards to my kids for years. The story always seems to revolve around shoes, socks, and school, especially in Emmett's case. Almost every single morning, we spend upwards of an hour or more, trying to help Emmett tolerate his shoes and socks. There are times that we succeed in overcoming these obstacles and there are days in which we don't even come close. The examples I've given have mostly revolved around Emmett missing school because he can't tolerate his shoes and socks. No matter how many times I've tried to explain that Emmett's not trying to get out of going to school, there's always that doubt in people's mind because it seems like getting to stay home is his ultimate goal. As I've…

4 Comments

It feels like my sanity has existed stage right

The boys were up super early this morning but Lizze let me sleep in. I was still up around 8:00 AM and have been moving a bit slowly thus far.  We've opted for no video games this morning because there's been to much fighting over them lately. Both Elliott and Emmett have been at each other's throats and I'm already feeling my sanity existing stage right.  I've got a shitload of laundry staring at me and I've accepted the challenges of folding and sorting. 

2 Comments

3 items are helping my son with #Autism gain independence  

I've spoken about this a few times before, but I wanted to share something we've done, to help our low functioning teenager with Autism, gain a bit more independence. Gavin is seventeen years old and struggles in most areas of his life. He's unable to remember things, and his cognitive ability is in a slow, unending decline. One of the things that we've recently done to help him better manage his daily life, weekly schedule and bedtime routine, is introduce some home automation into his room. I've been working on automating our home over the last year or so. For whatever reason, Gavin was resistant to being included in this process but a few days ago, he decided he'd like to give it a try and that's pretty exciting because…

6 Comments

….and this is how life is treating us today

The goal for today is to get the kids to a movie. It's Elliott's birthday and we want to do something special to celebrate the actual day.  Lizze didn't sleep last night but I actually slept quite well. I woke up a few times but I'm not sure why. I feel pretty good and I suppose that's what matters.  Gavin's doing well after his IVIG infusion last night and that's always a good thing. Sometimes he feels under the weather, has a headache or feels nauseous after an IVIG infusion.  At the moment, I'm spending some of my energy on housework, in an attempt to make some progress. If it wasn't so fricking cold outside, I'd find us something to do in the outdoors but alas, it's fucking cold. 

2 Comments

Taking advantage of the unseasonably warm weather 

With all the warm weather we were having, Lizze and I have been getting the boys to the park as often as possible. This is from the a few days ago, before the weather turned nasty once again.  If I recall correctly, it was about 60°F when we were exploring the garden center, earlier in the week.  Below are some of the pictures from our little adventure... ☺ 

0 Comments

Check out Emmett’s report for school

Emmett has been getting these assignments from school that are similar to esay questions. This particular assignment had Emmett answering the following question.  Would you rather play outside in the snow or stay inside and drink hot chocolate?  His teacher basically wanted to know if he'd play in the snow or stay inside and do something else. The idea is to get the kids familiar with writing basic paragraphs.  The kids are allowed to type the paragraph and email it because that's teaching them to utilize technology, as well as learn to use Microsoft Word.  Below is his paragraph.  I would stay inside and play with my ferret Fat Tiny instead of playing in the snow. I like to play with Fat Tiny because she’s fat, fuzzy and warm.  I…

0 Comments

I had a tough time corralling my kids tonight 

Gavin had his IVIG infusion tonight and everything went well. I think start to finish, it took roughly two hours to complete.  Elliott and Emmett played quietly in their room until bedtime but were a handful corralling when it was time for bed. They're pretty overstimulated from this evening festivities.  I'm not having a good time trying to get the cooperation I need to get them in bed.  Lizze has been having a rough day with the weather and went to bed after we celebrated Elliott's birthday. She's usually the one that puts the kids to bed at night but I thought I would give her the night off so she can rest.  I may end up with a super quiet house tonight and that means I can get some…

2 Comments