Read more about the article Hopefully he’ll feeling better as the day moves forward
Emmett John / My thoughts

Hopefully he’ll feeling better as the day moves forward

Emmett woke up about 4 AM with a tummy ache. He climbed into bed with us and snuggled me. I don't think he ever fell back asleep. It was pretty clear that he was miserable. There's a stomach bug going around the school but to be completely honest, this could also just be an Emmett thing. At the moment, Emmett is laying down in our bed resting. He's watching Netflix while he's buried in blankets and surrounded by pillows. He's not eating anything and that's another sign that somethings not right. Hopefully, he will feel better as the day moves forward.

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February 27, 2018
Read more about the article A quick update about the school safety meeting
My thoughts

A quick update about the school safety meeting

I wanted to just push out a quick update in regards to about how our meeting at the school went tonight. The meeting went well. Unfortunately, only five or six sets of parents showed up but whatever. We learned more about the safety steps they are implementing in order to keep our kids safe. We also talked about setting up a PTA type group. The principal and I will be working on some fundraising projects. There are a few other parents who are join us as well and that's really awesome. It was a positive meeting and I'm glad we made the time to go..

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February 27, 2018
Read more about the article We have a parent meeting at the school in regards to safety
My thoughts

We have a parent meeting at the school in regards to safety

Heading out to a school/parent meeting in regards to school safety and a few other things. I'm not sure how long this is going to last or how many parents will actually show up, but we're going to be there. Historically, not many parents show up to these meetings but I'm hoping that in light of all that's happened in recent weeks, we have a good turnout. The only way we can make sure our kids have the safest educational experience possible, is to be actively involved and helping any way we can. My hope is that the changes we already know about, in conjunction with those we'll learn about tonight, will go a long way towards ensuring a safe, secure school building.

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February 26, 2018
Read more about the article Why are people such assholes?
My thoughts / Vent and Purge

Why are people such assholes?

I'm one of those people who believes that humanity is inherently good. I think that the majority of people are good souls, regardless of disability, race, ethnicity, religion, gender sexual orientation or gender identity. No one will ever convince me otherwise. Having stated my default outlook on life, I'm not oblivious to all the assholes, of which there are many. One such asshole is continuing to thwart my efforts at helping the Autism and Special Needs Parenting communities by continuing to report the posts I share on my own timeline and page as spam or offensive. They continue to claim that I'm violating community guidelines and Facebook automatically removes every post reported. I can see dozens of these every single day. When I click on the it's not spam link,…

5 Comments
February 26, 2018
Read more about the article Gavin’s IVIG infusion is NOT going well
Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / Vivint Gives Back

Gavin’s IVIG infusion is NOT going well

Gavin's IVIG infusion is not going well this morning. For some reason, we can't get any flow and I'm having to force the solution through the tubing manually. It works but it's very difficult and quite painful for a Gavin. I don't know what's wrong for sure, but it could be scar tissue. All I can do is continue to force it through or re-stick the needles in his belly. Gavin wants to avoid being re-stuck and I don't blame him. Hopefully, this will finish up sometime this afternoon and he will be okay. I'm just going to keep an eye on him through the Ping camera from Vivint Home. I've found so many uses for this system but the best have involved using the cameras to monitor my kids…

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February 26, 2018
Read more about the article A significant increase in security at my kids school today
My thoughts / School Related Issues

A significant increase in security at my kids school today

The boys did awesome this morning. They got ready for school and out the door with very little effort, at least compared to what it's been like recently. I took them to school and when I dropped them off, I noticed a major change at the door. Every child is scanned for metal objects prior to entering. This is totally new and I was sorta taken a back by this at first but then I was forced to remember the reasons behind this. I'm angry that something like this is necessary but I'm grateful that the proper precautions are being taken in order to help insure the safety and we'll being of our kids. So far, there have been several changes within the school to address possible safety concerns. I…

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February 26, 2018
Read more about the article Childhood Disintegrative Disorder is stealing our son from us
Childhood Disintegrative Disorder / Gavin / My thoughts

Childhood Disintegrative Disorder is stealing our son from us

This post was started on Friday and has taken me this long to finish. It's been a long weekend and I apologize for my absence. I was largely absent here today because I'm struggling a bit right now. I'm having a hard time coping with certain things at the moment, Gavin being one of those things. I'll be the first to admit how terrible that sounds. I can assure you, it feels worse for me to say that. Gavin is driving me crazy and it's taking a toll. As time moves forward and his overall condition worsens, it becomes harder and harder for him to think. He has a much more difficult time trying to think his way through even the most one dimensional situations. These are things like figuring…

4 Comments
February 26, 2018