After I get Gavin to have his bloodwork done for the week, I'll be spending most of the day with my grandmother. She's not going to be with us much longer, and I want to be there as much as I can. I'm going to bring some work and just hang out in case she needs anything. This is a struggle for me, and I'm really depressed. This is the part of life that no one enjoys.
Children with autism or other learning disabilities are at a higher risk of developing pediatric incontinence due to developmental delays that may impact proper toilet training...
I'm keeping this brief because I'm exhausted, both emotionally and physically. That said, I did want to let you know what happened at Lizze's appointment with her orthopedic specialist. The X-rays came back and apparently; there's nothing that requires surgical intervention. That's awesome but not at all what we thought was going to happen. Lizze has been told a few years back that she needed surgery to clean up her knee. She put it off until her knee was so bad that she couldn't take it. It turns out what looked like damage was a bit of arthritis behind her knee cap. The problems she's experiencing don't seem to be her actual joint physically. What the doctor thinks is happening is that the arthritis is causing something, I can't remember…
Alright. Lizze had her knee x-ray, and as expected, it went just fine. We don't know what they show, but the process was smooth. She got in early, and we had about an hour to kill before she sees her doctor to learn the results. I was mistaken about her having an MRI on her knee today as well. She needs it and will have it done, but insurance required the x-ray first, and then we can schedule a return trip for the second MRI. It would be nice to knock this all out today, but insurance is being difficult. It's only about an hour long drive to get here, so it's not a huge deal. We just can't get enough of the Cleveland Clinic. 🙄 Hopefully, we'll at least…
We got the boys dropped off and made our way back to the Cleveland Clinic again today. This time we're at the Medina location because that's where her orthopedic specialist is. We have a crazy long day ahead of us and plenty of time to wait between appointments. Lizze is getting an x-ray of her knee first; then she sees her doctor. About two hours after that, she has an MRI with contrast of her brain. This is related to her migraines. You may remember that Lizze has what her old neurologist called, a brain full of cysts. They are not believed to problematic, but her current neurologist at the Cleveland Clinic hasn't seen them, and he wants to make sure all is well inside her dome. We have always…
It's super quiet in my house right now, and that rarely happens, but I like it. Emmett is watching a video, Gavin is sleeping off his morning meds, Elliott is just sleeping, Lizze is getting ready for her appointments, and I'm writing this. 😊 We have a long day ahead of us, and on the other side of it, we'll know how bad Lizze's knee is and what kind of surgery is necessary. I know she's really nervous, but today is just about gathering information. I'm hoping that anything she needs to have done is minor in nature. It seems like everyone in my life right now is undergoing knee replacement surgery. I'm not sure her knee is that bad, but we'll soon find out. Please keep her in your…
It's been an incredibly long day, and I'm exhausted. For those tardy to the party, Gavin and I spent the day with our friends at the Cleveland Clinic. He was undergoing neuropsych testing. The purpose was to benchmark his level of function across several categories and compare to his baseline testing from 2014. We've seen what feels like significant regression over the last few years and his neurologist ordered neuropsych testing to establish where his new or current baseline is. Doing so will give us a better understanding of what's changed over the last five years, and we can do to better support him. His testing went well. I think it was roughly here hours long. He finished the entire process this time, and while he did get frustrated, he…
I don't know if you're familiar with neuropsych testing, but here it is in a nutshell. According to my friends at the Cleveland Clinic, "a neuropsychological evaluation is a test to measure how well a person's brain is working. The abilities tested include reading, speaking, understanding, paying attention, and remembering." We've been here for about four hours so far, and I filled out paperwork when we first got here. Then there was a lengthy interview process with tons of more targeted questions. Gavin isn't able to really answer the kinds of questions being asked, but he was able to rattle off needed dates for a few things like it was nobody's business . 👍 Gavin was very preoccupied with having not eaten lunch, and the doctor said I could bring…