aspergers Archives - Page 340 of 512

Why I ask about my kids day at school before we get home

I was able to enjoy some me time again today, while waiting for Elliott to be dismissed from school. I played some ambient noise in the car and caught up on the news. I didn't get much writing done but I did get to sorta zone out for a little bit. Elliott is usually one of the first kids out the door when the school day ends and I'm always the first in line for parent pickup. One of the things I always do is ask the boys about their day before we get home. I'm looking for how their day went, did they experience any problems and if they enjoyed their lunch. On Monday's, I ask about homework and things like that. I prefer to do this before we…

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February 27, 2017

Announcements

Here’s some exciting news

I just wanted to take a second and share a bit of exciting news. I've been working really hard to get this blog back to where Lost and Tired was, prior to retiring it. It's been a long journey and I've struggled quite a bit. I'll probably continue to struggle at times as I continue to move forward. Having said that, things have begun to pick up and while some of these things have no impact on income, in many ways they're better. I'm booked for several different podcasts in the coming weeks. There's been several interview and partnership requests as well. I've even received some writing offers. I can't go into more detail than this at the moment but I'll definitely share when I have more information. All the…

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February 27, 2017

Emmett John / My thoughts

How we handle one of our kids with #Autism being home from school

It was a rough night but I did get some sleep and so did Elliott. Having said that, we had Mr. Emmett throw a wrench into our plans today because he woke up not feeling good. Emmett loves school and so faking an illness to stay home isn't his thing. His stomach was upset and there was no getting him to do anything. Lizze and I kept him home because we didn't know what else to do. It's really frustrating because Emmett struggles with expressive language in a very big way. Gaining insight into what he's experiencing is no easy task. Sometimes we can only step back and look at everything as a whole, making a decision based on our best guess. Emmett's home from school and when one of…

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February 27, 2017

Elliott / My thoughts

Why this Dad is sleeping on the couch tonight

Let me tell you about my favorite way to start the new week. By favorite I mean the absolutely worst way to begin the week cause it sets a tone that seems to follow me through the rest of it. Picture this, the boys are in bed, and I just hit the Walgreens to pick up a gallon of milk and some ice cream. It's Sunday and that means Lizze and I plan on being parked on the couch, killing time until Last Week Tonight begins at 11pm. This is our Sunday ritual and the way we say goodbye to the weekend and hello to the week ahead. Unfortunately, on this Sunday, Mr. Elliott decides he's not going to be able to fall asleep. Did he plan this out because…

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February 27, 2017

Gavin / IVIG Infusion

Why I withheld my son’s IVIG infusion this week

I'm pretty sure I told you that Gavin's IVIG supplies were delivered on Wednesday. What I didn't explain was that we held off on giving it to him until Friday. The reason behind that seemingly counterintuitive move was simple. By the time we could have given him his infusion on Wednesday, it would have been really late in the day. With his next scheduled infusion being essentially twenty four hours away, it was too close together. If we had gone ahead with a Wednesday infusion, we would have had to push off the Friday infusion, thus fucking up the entire schedule as we worked to get things back on track. By holding off and waiting until Friday, we were able to preserve the schedule and keep things from getting worse…

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February 26, 2017

Elliott / General Update

UPDATE: We met with Elliott’s pediatrician and it didn’t go as planned

Last Thursday, we took Elliott to the pediatrician because she's taking over his ADHD management. We were also there to discuss Elliott's headaches and maybe get a referral to a specialist. The ADHD part of the appointment went really well. There's not a great deal to managing ADHD aside from the medication and follow ups every three months. When we began talking about his headaches or migraines, I asked if this could be related to dehydration. Elliott doesn't drink nearly enough water and before we go any further down this road, we're going to focus on his hydration and see if that helps. Elliott doesn't drink much of anything during the day and it's very difficult get him to drink water. The doctor explained to Elliott that we are absolutely…

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February 26, 2017

Common Variable Immunodeficiency / Gavin / General Update / Immunology / IVIG Infusion

Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies. Let's get this out of the way first. Gavin's doctor's office was finally able to get things straightened out with our current supplier. The supplier appears to be who dropped the ball on this one. Setting aside blame and focusing on what matters most at this very moment. I can share that Gavin's medications have been reordered. They should be arriving on Wednesday. How am I going to prevent this from happening again? The simple solution to fix this is going to be complicated…

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February 21, 2017

Awards

The Autism Dad blog made #4 on the list of top 50 #Autism Blogs

I wanted to take a minute to thank Feedspot for an amazing honor. They've indexed thousands of Autism related blogs and pulled to top 50 for their list. I've been selected and placed in the #4 spot. This is pretty amazing for me and I know I'm in excellent company. Below is the quote from Feedspot on how they ranked everyone. Thank you Feedspot for this honor. :-) The Best Autism blogs from thousands of top Autism blogs in our index using search and social metrics. Data will be refreshed once a week. These blogs are ranked based on following criteria Google reputation and Google search ranking Influence and popularity on Facebook, twitter, and other social media sites Quality and consistency of posts. Feedspot’s editorial team and expert review …

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February 3, 2017