aspergers Archives - Page 334 of 512

When good news is heartbreaking

I wanted to share some insight into what it's like to be heartbroken by good news. I know that sounds weird but let me explain. On Tuesday, we were informed that Gavin has graduated from speech therapy. He had brought his scores up in several areas and he no longer fit the criteria that would enable him to continue. On the surface that sounds like amazing news and in some ways it is. Gavin's worked very hard to make some of these improvements and we're proud of him. The heartbreak comes when you see beneath the surface and understand what this graduation really amounts to. The reality that my wife and I face is that we're so happy and proud of Gavin for doing so well in speech. On the…

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March 24, 2017

Why I’ve had a change of heart about #Autism Awareness month

As one ages through life, one tends to gain wisdom and insight that they were previously lacking. What I mean by wisdom is learning from one's past and gaining insights into different ways of thinking. I'm absolutely no exception to this, and I want to share something that I've recently had a change of heart about. We all know that April is Autism Awareness month. This is the one time of year where the world's eyes and ears are pointed in our direction (the Autism community). In the past, I've taken a pretty hardline stance on the Autism Speaks Light it up Blue campaign. I've been very vocal about how I feel that buying a blue light bulb is more about padding the bottom line than raising Autism Awareness. While…

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March 23, 2017

Announcements

Here’s what happened

It's been a few days and there are a few reasons for that. The biggest however, is that this site went down and it took me almost three days to fix it. I'm still not sure what happened but I've rebuilt from the ground up and I think everything is in the exact same place it was before. I've been extremely frustrated since this while thing began and I dislike not knowing what's actually wrong. There's still a few things that need to be located, identified and fixed but I'm waiting on the guys at Automattic to get back to me. I just wanted to apologize for the down time and thank you all for sticking around. There's a lot to update you on and I'll do my best to…

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March 22, 2017

My thoughts

I’m sick for a few days and it all goes to hell

First things first. The boys had a great day at school and received a big surprise when they got home, in the form of my Dad taking all three of them to dinner. ☺ I mentioned in the title about things going to hell. That's in reference to this blog. While I was sick, I didn't access the site for almost three days. When I tried getting back on track today, it's honestly like everything that could go wrong, did go wrong. There were all kinds of issues that began popping up and I spent most of the day trying to figure it out. It wasn't a security type issue but rather code corruption somewhere and I couldn't track it down. Long story short, it's all fixed and ended up being…

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March 21, 2017

Autism Parenting Woes / Emmett John / My thoughts

Why getting my youngest with #Autism to school is so exhausting

Remember last night when I said that I suspected Emmett was going to have a difficult time this morning? That turned out to be the understatement of the year. Emmett was beside himself all morning long. Lizze and I tried forever to help him through whatever emotional hurdle was in his way but we didn't manage to do that. We did however, manage to get him to agree to go with me and talk to his teachers. In order to further redirect his attention away from his anxieties, I picked up donuts while getting gas on our way to school. We ended up being thirty minutes late but we made it. He didn't even need me to walk him in because the redirection was a success.. This is great news…

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March 20, 2017

Gavin / My thoughts

It’s the not knowing that kills me as a parent

It's becoming clear that Gavin's struggling more and more. Unfortunately, there's no way to know if this is another leg of his journey with Childhood Disintegrative Disorder, the result of changes to his medications or just par for the course. His level of functionality is decreasing and doing so in weird areas. Things like self-awareness are slipping. There's never been a great deal of that to begin with, so this change is noticeable. What do I mean by self-awareness? Gavin had an ice cream sandwich this afternoon. About three hours later, I took the boys to the park to hunt Pokémon for short while before picking up their pizza for school tomorrow. I wasn't paying attention to Gavin's face, like I usually do before we leave and I was caught…

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March 20, 2017

My thoughts

I feel like I’m being held hostage by my sick kids

Both Elliott and Emmett we're home from school, as I mentioned earlier. Both boys also seemed to be doing better during the first half of the morning. Unfortunately, shortly after the lunch hour, things went downhill. Lizze and Gavin were both sleeping. It was just the E's and myself in the living room. Elliott fell asleep on the one couch and ended up sleeping for well over four hours. The poor kid would stir a bit, cry and fall back asleep. 🙁 Mr. Emmett climbed up on my lap and fell asleep in a really awkward position. He was clearly comfortable but I was far from it. I was twisted in a weird position and all I wanted to do was straighten my leg out but I couldn't without moving…

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March 16, 2017

My thoughts

We just can’t catch a break

After I finally got the kids to sleep last night, I ran into another mini-crisis. Out of nowhere, Gavin wakes up sobbing because his back and neck hurt so bad that he couldn't go back to sleep. I woke Lizze up. It took her and I both, to calm Gavin down. The only thing we could do was give him an Advil and try to get him back to sleep. He did eventually go back to sleep, and when he woke up this morning he was feeling better. We have no idea what caused his pain last night but suspect that perhaps he was sleeping in a weird position. Lizze let me sleep this morning and she got up with the boys. Actually, she pulled the wife card and ordered…

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March 15, 2017