Read more about the article I’m worried about Gavin and scared to get the results
Gavin / My thoughts

I’m worried about Gavin and scared to get the results

One of the things I hate most in life is waiting. We all have to wait for things but waiting for medical test results, especially when it's serious and in regards to your child. I've said this a million times over the years but all we can do now is hurry up and wait. Gavin's labs should be done this afternoon and we'll likely hear from the doctor mid-afternoon. All I want to hear is that his numbers are climbing back up and everything is going to be okay. Unfortunately, even if that's the case, we still don't know why this keeps happening. I'm exhausted, stressed out, worried beyond belief and overwhelmed by everything. It's truly awful when all you can do is hurry up wait.

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October 25, 2017
Read more about the article A lot rides on this morning’s outcome
My thoughts

A lot rides on this morning’s outcome

Gavin's going to have his labs drawn again this morning, in hopes that the previous results were in error. You may remember that I received a call yesterday, delivering the bad news that Gavin's labs came back and the numbers were not good. I'm really nervous about what the results are going to be. The only thing that has changed since yesterday is that the doctor called back and scheduled Gavin for an emergency appointment on Thursday. The plan for this morning is a bit chaotic. I have to get Emmett to school, drop Lizze at the doctors, take Gavin for his bloodwork and pick Lizze back up. Somewhere in there I'll have to stop gas. I'm praying that Lizze doesn't have walking Pneumonia and that Gavin's labs are better.…

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October 25, 2017
Read more about the article I’ve got heartbreaking news
Clozapine Crisis / Gavin / My thoughts

I’ve got heartbreaking news

I received a phone call this morning from Dr. Reynolds office. I assumed they were calling to move our appointment again but I was wrong. Apparently, Gavin's labs from yesterday came in and his numbers are dropping again. Right before we left for Florida, he had labs drawn. His Absolute Neutrophil was 3 and his White Cell count was 5 at the time. Unfortunately, his labs from yesterday show a sharp drop. His Absolute Neutrophil is 2 and his White Cell count is 3. This means one of four things: The Clozapine has nothing to do with this. The Clozapine is causing this and he's going to have to completely detoxed from it to know for sure. The Clozapine may had caused permanent damage. This is part of CVID and…

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October 24, 2017
Read more about the article Please God, help Emmett survive the day
Autism Parenting Struggles / Emmett John / Meltdowns / My thoughts / Sensory / Shoes and Socks

Please God, help Emmett survive the day

I didn't sleep worth a damn last night. I managed to fall asleep shortly before the alarm went off. Lizze sent me back to bed because she's amazing. Next thing I know, I'm being drafted into a massive battle with Emmett, who's refusing to go to school again. This was the worst morning he's had in a very long time. It was his crocs that were the problem today. He simply couldn't get comfortable and longer this went on, the worse it got. Between several calls to the school and the principal getting on the phone to try and talk Emmett through this, we finally got him in the car. Unfortunately, by that time, we were almost an hour late. I'm more exhausted now than I was before, only I…

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October 24, 2017
Read more about the article Gavin had a massive meltdown and it sucked
Autism Parenting Struggles / Gavin / Meltdowns / My thoughts

Gavin had a massive meltdown and it sucked

Lizze and I have been keeping a close eye on Gavin. We always keep a close eye on Gavin but more so now because of his medication changes. Gavin had another meltdown yesterday evening over something that wasn't a big deal, at least not to us. Gavin is always asking for ways he can help and typically won't stop until we give him something to do. If we don't, he gets this sad expression on his face and will repeatedly return, asking the same question. Some of the things Gavin has been doing are the laundry (putting into the washer and switching to the dryer), dishes, managing the recycling and helping with the pets. All these things are important life skills he needs to know anyway, and the more practice…

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October 24, 2017
Read more about the article Looks like we’re tempting fate once again
Elliott / My thoughts / School Related Issues

Looks like we’re tempting fate once again

Unfortunately, Elliott is still running a fever tonight and that means he won't be in school again. He doesn't appear sick in any way, shape or form, but a fever is a fever. I am contemplating getting him into the pediatrician, just to make sure all is well. Elliott's not going to like that because he's absolutely terrified of all doctors, but at the end of the day, we need to make sure he's okay and that we have a doctors note. I'm not sure that's going to matter but it's not going to hurt to ensure we have as much documentation as possible. I'm hoping that Elliott's fever runs its course and he can return to school. I put the wellbeing of my kids before any ridiculously blanketed, State…

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October 23, 2017
Read more about the article Here’s to hoping Elliott actually sleeps
Elliott / My thoughts / Sleep Issues

Here’s to hoping Elliott actually sleeps

We cut TV and tablet time off a bit eariler tonight. Elliott hasn't slept in almost two days and we wanted to make sure that the evening was as calm/quiet as possible. For part of the evening, we broke out Candy Land and Uno. It made for a nice, quiet evening. At this point in time, everyone is in bed and I'm praying it stays that way until at least 6:30 AM. Elliott's still running a fever and it doesn't look like he will be going to school in the morning. Frankly, if he sleeps tonight, I'll be happy and feel a sense of relief. ☺

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October 23, 2017