aspergers Archives - Page 200 of 512

Why it’s important for special needs parents to find something positive in each day

When you're a special needs parent, it's quite common to feel overwhelmed. If you did a keyword search in this blog, you'd find countless times I've used the word overwhelmed to describe how I'm feeling. Being overwhelmed isn't something that's easy to deal with because of its very nature. When I'm overwhelmed, I sorta feel like I'm being crushed under the weight of all that's going on in my life. In that moment, I'm unable to carry the weight and no longer able to even process anything. It's kinda like a computer bogging down because it's doing too much at one time. During these moments, it's not uncommon to feel a sense of dread or dispair. It's important that you not give into these feelings. It's hard for people to…

1 Comment

February 19, 2018

My thoughts

Do you ever feel like life has just kicked your ass?

It's been a long weekend and it's still not over yet cause there's no school today. There's not been anything catastrophic that's happened in the last few days but I feel like I had my ass kicked up one side of the road and down the other. Truthfully, Lizze and I are both on edge but there isn't one single thing that's responsible for our stress. It's a combination of things and it creates tension between us that we don't even realize is there until we have a disagreement. It's nothing major or even worth mentioning other than to illustrate how stress impacts us both. I know Gavin is wearing on me but so is everyday life. I'm absolutely exhausted, overwhelmed and truly feeling like life is kicking my ass.…

0 Comments

February 19, 2018

My thoughts

I desperately need a nap

I’m going to be straight with you guys because the only way I can help is to be honest and transparent. With that being said, Gavin’s driving me crazy. He’s requiring more and more effort as time goes on. I know that sounds bad but let me explain.

0 Comments

February 18, 2018

My thoughts

Being a Special Needs parent has been so heartbreaking recently

I write a great deal about being an Autism and Special Needs Parent. I've done this for close to a decade now and I don't plan on quiting anytime soon. There's a tremendous need for awareness and by sharing our story, it helps others to understand. One of the things I'm struggling with right now has to do with Gavin, my 18 year old with many serious Special Needs. His needs are both of the physical and emotional variety. The most pressing matter at the moment is in regards to his physical health. Gavin has several life threatening health problems and they are very consuming for me as a parent. Currently, Gavin has been having issues with his blood, more specifically, the cell counts in his blood. In a nutshell,…

0 Comments

February 17, 2018

Gavin / My thoughts

Praying I wake up to good news

We never got Gavin's lab results and I'm struggling with that tonight. His numbers have gone from dangerously low to sort of okay and back to dangerous in a matter of days. There's a chance it was lab error but which one was in error? Was it the sorta better results or the dangerously low results? This is the question I've been asking myself since last week. The only way to have a better idea of which is accurate is to add more data to the equation. If these results come back and his numbers are low, we know that it's likely correct. If they come back sorta okay, we know that will likely be correct. The more data points we can add, the better picture we have of what's…

2 Comments

February 16, 2018

Emmett John / Family Pets / Ferrets / My thoughts

Whatever makes him smile

Things are looking good going into another four day weekend. Yup, that's right. Another four day weekend is upon us. Lizze isn't feeling well but it's because of the weather and fibromyalgia. Thank God we don't seem to have flu or anything like that going around. I don't mean to minimize what she's going through because she's absolutely miserable. I was just clarifing that it's nothing contagious. Fibromyalgia is a bitch and it's hard to wrap your brain around something that can't be seen or quantifed. I assure you, the pain is real, even if you can see it with your eyes. The boys and I are going to bathe the ferrets tonight and clean out their pen. Emmett's super excited because we have a new shampoo to use. Whatever…

2 Comments

February 15, 2018

Clozapine / Gavin / Medication Management / My thoughts

There’s way too much shit to worry about as a special needs parent

I've been playing a very frustrating game of phone tag with the pharmacy this afternoon. I need to make sure they either look out for a fax from the lab or call and have it faxed over because Gavin needs his refill tomorrow. I cannot stress enough that Clozapine is the most tightly controlled medication in the United States for a reason. You do not fuck with this medication and it has to be taken seriously. The fucking stress that we experience simply because of this goddamn medication is inexplicable. I also reached out to his doctor and asked that they immediately email with the results of his his labs because I'd like to sleep tonight. They do that anyway but I feel better reminding them. They know how serious…

8 Comments

February 15, 2018

Gallery / My thoughts

It was a weird day but I finished an awesome project (Check out the pictures)

It was a weird day. The boys made it through the day at school and my Mom picked them up at the end of the day. She was going to take them both to dinner and then to hang out. On the way to her house, Elliott called and wanted to come home because Emmett was driving him crazy. He wanted a break and we of course, welcomed him home with open arms. Gavin arrived home a little while later after spending a day and a half at Lizze's parents. He had a great time but it was good to have him home. ☺ A little before dinner, I was inspired to finish a project that needed to be done. We had recently lost most of the fish in our…

2 Comments

February 15, 2018