Emmett did awesome in physical therapy today. That's not surprising really but it is worth sharing because it's today glimmer.. There are a million things that go on each day and not all are pleasant. When the good ones come around, I like to hop on that scooter and ride it as far as I can.... Great job Emmett... You brightened my day by seeing all you can accomplish. ☺
I'm struggling with Gavin's diagnosis and it's really hard for me to focus in anything else right now. That being said, I did get the kids off to school, mostly on time and I walked 3+ miles afterwards. I had absolutely no desire to walk but those are the days when I truly need to force myself. I'm glad I did but it really drained my tank for the rest of the morning/afternoon.... ☺ I feel pretty good that I accomplished that because it makes me feel a tiny bit productive today. . ☺ I take what I can get. . ☺
Admittedly, I'm a bit overwhelmed and preoccupied with this whole Childhood Disintegrative Disorder thing. Some of you have been asking about Gavin IVIG infusion yesterday because I hadn't yet spoken about how the new infusion site went. So here's the deal... Let me start off by saying that Gavin is the bravest kid I've ever met. The things he endures on a daily basis would be consider intolerable by most adults and yet he never complains about his lot in life. Yesterday's IVIG infusion was the first attempt at infusing his donor immune system into his thigh, rather than his belly. In the last 2.5 years of him receiving these at home, he's had to endure over 520 needles being placed into his stomach area. That number is low because…
So it's a brand spanking new day and it's time to get the boys off to school. Elliott's in rare form this morning and seems to have made it his mission in life to push Emmett's buttons. I've already had to break up a few altercations between the two of them. That being said, they have been relatively cooperative and I'm super grateful for that. ☺
It's been a really long day and I haven't felt like writing tonight because I'm trying to process everything. I was going to do a Periscope broadcast and I probably will tomorrow at some point because sometimes it's easier to simply speak. I'm going to try to write this but my brain is sorta on overload at the moment, so please understand that I'll write something more coherent later. Anyway, I didn’t want to talk much about this until I had spoken to my family first. I spoke to Lizze and most of my family. I'll try to talk to Lizze's Mom again at some point to explain what's going on as well. I just didn't want people reading about this before I could tell them myself. The image above…
So I have the pleasure of sharing some of Emmett's artwork from today. ☺ The balloon is something he did in art class. Pac-Man was a coloring page he printed out before going to school this morning. 😀
Gavin and I have had a pretty good day. I'm really trying to shake off the bad news about his diagnosis and focus on some of the more positive aspects of today. After all the chaos from this mornings appointments, Gavin and I did some grocery shopping and filled our water jugs. He was a really big help and afterwards, we had lunch. At the moment, we're just sorta chilling out in the car waiting to pick up the boys from school. It's a beautiful day and while it's a tiny bit chilly, the sun is shining and I can pretend everything is okay. 😊
My 10 year journey with Gavin comes to a heartbreaking conclusion today