The boys have dinner with their Mom tonight

The boys will be going to dinner with their Mom and Grandma tonight.. They do every other Wednesday dinners and they fall on the weeks opposite of their every other Friday over-night stays with their Mom.  It doesn't give me a lot of time to myself but it is a tiny little break. More importantly however, it's a chance for them to spend some time with their Mom.  I'm not a bitter person and I believe it's important crucial for the boys to have a happy and healthy relationship with their Mom.  This is a far from ideal situation and one that I would have never chosen for myself and the kids.  Some things however, are outside of one's control and all you can do is find the positive, pick…

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Maggie’s got a clean bill of health

Maggie had what was believed to be a cancerous tumor removed from her leg about a week and a half ago.  The surgery went well and she has recovered nicely.  This morning, she went in for her followup appointment and to get her stitches removed.  Thankfully, she has a clean bill of health and is healed from her surgery.  I'm pretty grateful for that because she's such a huge part of our lives and we love her tremendously.... ☺

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Maggie gets her stitches removed this morning

It's a packed house today with both boys being home from school.  The benadryl seems to be helping and they are slowly feeling better as the day goes on.  Perhaps it was more allergy related? Either way,  they will have to come with me to get Maggie's stitches out.  I can't put this off any longer and it's already been rescheduled once.  Taking them will prove challenging but that challenge aside, it will bring Maggie's cancer scare to a close for the time being and some closure for the kids.  We just need to make sure we watch for more tumors going forward.  I'm already in need of a nap and it isn't even lunch time yet...  lol

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Holy Shit…. The boys have the next 5 days off from school O_o

The boys seem to be dealing with an upper respiratory thing that's apparently going around the school.  Elliott was coughing last throughout the night and poor Emmett is so plugged up, I can hear a high pitched whistle noise when he breaths through his nose.. When I called them off this morning, the principal was saying that it's going around the school.  I'm gonna get them on some benadryl after they eat and hopefully that will help to clear them up a bit.  The oh shit happened when I realized that the boys had a 4 day weekend starting tomorrow.  That means with today added to that, they're gonna be home for the next 5 days... I love my kids more than life itself but I also like my sanity…

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A few things I did right today

Rather than focus on what didn't go right today or the things I failed to accomplish, I thought maybe I could talk about a few of the things I did right.. For starters, I dragged myself out of bed this morning and while I was exhausted I had a good attitude.ย  ☺ I managed to get Emmett's shoes on in a way he found acceptable and did so on my first try.ย  The tooth fairy forgot to show up for Elliott last night and I was able to pull off a special delivery so the tooth fairy was able to save face with my middle minion.ย  😉 Emmett made it to physical therapy on time and I remembered to bring Elliott's tablet so he was able to entertain himself instead…

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Today’s #Autism Glimmer: Emmett kicked butt on physical therapy today

Emmett did awesome in physical therapy today. That's not surprising really but it is worth sharing because it's today glimmer.. There are a million things that go on each day and not all are pleasant.  When the good ones come around, I like to hop on that scooter and ride it as far as I can.... Great job Emmett... You brightened my day by seeing all you can accomplish.  ☺

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It’s been a pretty good day for me

I'm struggling with Gavin's diagnosis and it's really hard for me to focus in anything else right now.  That being said,  I did get the kids off to school, mostly on time and I walked 3+ miles afterwards.  I had absolutely no desire to walk but those are the days when I truly need to force myself.  I'm glad I did but it really drained my tank for the rest of the morning/afternoon.... ☺ I feel pretty good that I accomplished that because it makes me feel a tiny bit productive today. . ☺ I take what I can get. . ☺

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Gavin’s spent 3 hours with needles in his leg

Admittedly,  I'm a bit overwhelmed and preoccupied with this whole Childhood Disintegrative Disorder thing.  Some of you have been asking about Gavin IVIG infusion yesterday because I hadn't yet spoken about how the new infusion site went. So here's the deal... Let me start off by saying that Gavin is the bravest kid I've ever met.  The things he endures on a daily basis would be consider intolerable by most adults and yet he never complains about his lot in life.  Yesterday's IVIG infusion was the first attempt at infusing his donor immune system into his thigh, rather than his belly.  In the last 2.5 years of him receiving these at home,  he's had to endure over 520 needles being placed into his stomach area.  That number is low because…

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