Just wanted to share that Gavin had the best infusion he's had in awhile. It was painful today but the process itself took only 1 hour and he's been up and moving around since it ended. Recently these infusions have taken anywhere from 3 - 8 hours to complete. Today however, went really, really well. Thanks for the thoughts and prayers... ☺
Please keep Gavin in your thoughts and prayers this morning. He's about to begin his second IVIG infusion at the new infusion site. For the second time, he will have the needles placed into his thighs instead of his belly. While the site is numb, it's a very uncomfortable process and it took about 3 hours on Monday. He had a difficult time walking for about 3 days, following his infusion on Monday. There may have been a little drama involved but he was definitely hurting. He's really nervous and could use some positive energy coming his way... Thanks ☺
I fell asleep early last night and was too tired to explain why the end of the day was so rough. Today I've been up since the butt crack of dawn and feeling pretty good, so I thought I'd get you all caught up.. ☺ We had a really good day yesterday but between dinner and bedtime, the bottom dropped out.. Gavin did well all day and that's not really a big surprise because that's pretty much status quo for him lately. Elliott, on the other hand, was all over the place. Between bouncing off the wall, sometimes literally, he was in a weird place and ended up pushing Emmett's buttons. He was is full on ADHD/ultra impulsive mode and nearly impossible to wrangle in. Emmett was in full…
We had a really good day today. We spent some time outside the house and everyone did great. Unfortunately, for reasons beyond my understanding, things went straight to Hell.. Emmett and Elliott were both in rare form. I'm so tired that I'm going to crash early and I'll explain all about this in the morning. Let's just say we were meltdown and bouncing off the wall central. Autism and ADHD totally kicked my ass...
The boys and I had a pretty awesome afternoon. We picked my Mom up and went to explore the Molly Stark Park, in the shadow of the really creepy/condemned Molly Stark Hospital.. This has been abandoned for around 20 years now and it's straight out of a horror movie. I'm not sure why they have chosen to make the grounds of this asbestos laden facility, a family park but they have. You can walk right up to the building and it's quite creepy but at the same time, absolutely fascinating. The boys had a great time and we walked the path at the park before having snacks and returning home. It was beautiful outside and the boys love exploring nature, while I love taking pictures... Check out my Instagram feed…
Gavin's down for the count as a result of his morning meds but when he gets up, I want to do something fun with the kids. At the moment, I'm broke as a joke, so it needs to be free fun.. Free fun is the best kind anyway. ☺ It's a beautiful day outside and I'd really like to take advantage of it, even if it's just taking the boys to the playground... I've got a tremendous amount of things to worry about right now but I'm feeling pretty good today and I just want to inject a little normalcy into our lives right now... ☺ I'm open to suggestions and I'll let you all know what I figure out... ☺
I woke up this morning to a clogged toilet and kids freaking out cause the Internet was shutoff. It's pretty amazing how we've come to rely on the Internet for just about everything and when it's not available, life comes to a screeching halt. The toilet was an easy fix but the Internet was a bit more challenging and a whole lot more painful. 😯 With both if these issues addressed, we can now begin our first day of the boys four day weekend. I'm gonna try and convince them to go walk the track this morning but for some reason, Emmett's become very apposed to that.... Either way, I'm gonna make the best of today and try my best to be as productive as possible.. ☺
I've made it a practice not to speak much about my pending divorce because it leads to people asking questions that I can't really answer. On this day last year, I had no idea I would only have 6 days left with my wife before she would leave. I spent some time today filling out some of the final packets of paperwork needed to give my wife the divorce she wants. After all that's happened, this divorce is without question the best thing for the boys and I but I hate even saying that because we were a family. :( I've gone through an entire spectrum of emotions over the last year but being angry was never really one of them.. Shock, heartbreak, betrayal, loss, confusion, grief and loneliness were…