Read more about the article I’m grateful tonight
My thoughts

I’m grateful tonight

Lizze is getting some shut eye and the boys and I are hanging out. We made pancakes for dinner and I focused more on serving sizes this time around and we had far less waste.. ☺ Gavin's getting his infusion and I'm writing this, while the boys are working together in the Xbox. It's almost bedtime and I'm feeling really good about this evening because it was pleasant. I was able to get some things done, make dinner and hangout with the boys.. I'm also glad that I was able to do this without needing to wake the wife. She's not been feeling well and needs some extra sleep. I'll probably put the kids down for the night and check on Lizze before settling in for some of whatever I…

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January 6, 2017
Read more about the article Today’s Victory: My kids owned the school day
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Today’s Victory: My kids owned the school day

The boys had a great day at school today, despite the way it was started. In my mind, that's a total victory. Elliott had a great day as well and hasn't had another issue with the kid that was bullying him last year. This of course, is super awesome as well and I'm so grateful for that.   I should also point out that Emmett received the results of his state testing and not only did he pass with flying colors, he passed at the accelerated level. This means he will be able to move on to fourth grade next year.  Unfortunately, he has to take the test again in the Spring, even though it won't count for him. The way we test kids in school is ridiculous in this…

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January 6, 2017
Read more about the article It’s was a sh!tty morning for this #Autism Dad
Emmett John / My thoughts / Sensory / Shoes and Socks

It’s was a sh!tty morning for this #Autism Dad

This morning sucked. On the positive side though, both boys got to school but it was a shifty, meltdown filled morning in The Autism Dad household. Elliott was pretty hyper but mostly cooperative and that's awesome. Emmett was another story all together. He's been having a rough time falling asleep at night since Christmas break threw his routine off and we've lost most all of the progress we'd made in that area. He's not getting enough sleep and that exacerbates the sensory related challenges we face every single morning in regards to shoes and socks. It was an absolute nightmare today and we battled for at least thirty minutes before he finally kept his shoes and socks on long enough to make it out the door, into the almost 0°F…

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January 6, 2017
Read more about the article UPDATE: What happened at yesterday’s appointment 
My thoughts

UPDATE: What happened at yesterday’s appointment 

Update: Video of crazy driver and our commentary is now on page 2. I had planned on getting this entry out much sooner but unfortunately, things don't always go as planned.   Majority of our day was spent driving to and from the family allergist. Lizze and Gavin both had appointments for different reasons. Lizze was going as a first time allergy patient and Gavin was there for allergies, asthma and immunodeficiency.  Both had bloodwork done.  Lizze is being allergy tested and also checked for the same immunological issues that Gavin has. The results will be back in a few days.  Gavin's bloodwork is checking his antibodies, platelets and a shitload of other things because he has a shitload of things going on. I'm anxious to get his platelet count because…

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January 6, 2017
Read more about the article That was horrible
Gavin / Immunology / Lizze

That was horrible

We just arrived in Cleveland for Gavin and Lizze's appointments. The drive was horrible due to the weather and very poor visibility. Things were made worse by our windshield wipers freezing in place once we were on the freeway. That was not fun at all. We should be on our way home in about an hour or so and I've already fixed the wipers and topped off the wiper fluid. Hopefully, our trip back will be a bit easier.

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January 5, 2017
Read more about the article Perception: One reason why being an #Autism parent is so hard  
Autism Parenting Woes / Gavin / My thoughts

Perception: One reason why being an #Autism parent is so hard  

I mentioned earlier that I've been struggling with Gavin today. Just so we're perfectly clear, he's not being a problem like he used to. He's simply being Gavin and that's exhausting for those around him, including myself.  Gavin is absolutely struggling in his daily life. He doesn't necessarily see it as struggling because he doesn't really possess that higher level of self awareness anymore.   Here's what kind of things are frustrating me now.  Last night, Gavin finished up his infusion and removed the needles from his stomach. He always has some tissue on hand in case there's any leakage or bleeding.   He removes the needles and I hear him freaking out about how badly the one infusion site was bleeding but he seemed to have addressed it himself…

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January 3, 2017