Family Archives - Page 184 of 553

I haven’t written cause I’m not doing so well

It's been a couple days since I've published anything about anything. There are a few reasons for that. The main reason however, is that I'm not doing so well right now. I'm not sleeping and I'm not coping well with anything. I'm overwhelmed by all I have to figure out and there's very little I can do about it. There are bills and major medical worries crushing me. Gavin's still missing medication to replace the GAMMAGARD. They still haven't figured everything out and Monday will mark his second IVIG infusion in a row that he's missed. It's terrifying. The change to his Clozapine hasn't really helped with him sleeping too much during the day. We don't know what to do with that. I'm fighting back but I feel absolutely powerless.…

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June 24, 2018

Contributed

Best Gifts For Children That Aren’t Toys

No matter whether your child’s birthday is coming up or you want to reward him or her for great behavior, you may be looking for a gift that will impress. However, if your child already has too many toys (which, let’s face it, most children do!), you may want to find something different. Gifts that help with development yet are still a lot of fun will benefit both the parent and the child. So, let’s take a look at some of the best gifts for children that are not toys. https://images.pexels.com/photos/707193/pexels-photo-707193.jpeg?auto=compress&cs=tinysrgb&h=350 Garden toolkit – Most children love to copy what their parents are doing. Whenever you are gardening, does your little one want to take over? You try to explain to them that it is dangerous for them to use…

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June 22, 2018

My thoughts

I’m super excited about this

It's not too often that I can pull off an actual surprise. Between the financial hardship and my inability to keep a secret from my family, it's not easy. I've managed to somehow keep a secret from the boys and aside from Lizze, they don't know a thing. In the morning, we're taking the kids to see the new Jurassic World movie as an early surprise for Emmett's birthday on Tuesday. He's been wanting to see this since it was announced.. I'm super excited to surprise him and his brothers in the morning.

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June 21, 2018

Contributed / Link

Day With Dad: How to Fit the Kids into Your Schedule

Link Let’s be honest about it, having a kid is never easy at the best of times, and having more than one can feel overwhelming! But, it is important to make time for our kids and to give them the interaction with both mommy and daddy. You play a big role in helping to shape your children’s futures, and the time you spend with them now is going to help shape the people they become. So, it is important that they get to enjoy a day out with dad, where they can hang with you, help you, and do things with you. Yes, it might be difficult to work this into your schedule, but there are certain things you can do that are going to help with this. Here are…

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June 21, 2018

Autism Parenting Advice / Inspirational Posts / My thoughts

The #1 most important thing we need to balance as #Autism parents and it’s not what you think

One of the more difficult things an Autism family can deal with is going out in public. This has nothing to do with shame or being embarrassed. It has to do with not expecting more from a child then they are capable of. Kids and adults with Autism can often struggle from things like Sensory Processing Disorder and anxiety. These can make going anywhere, very difficult for them. As parents, we don't want to put our kids through anymore then we have to and so many times, we avoid going places. While that tends to make life easier in some ways, it makes it harder in others. I've said this a million times but when you're an Autism parent, problem solving is often very complicated. It's not easy to find…

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June 21, 2018

Gavin / My thoughts

3 extremely important updates you missed

I've been slacking off in the writing department lately and I apologize for that. In order to get everyone caught up on the last couple of days, there are 2 important updates to share. I'll begin with yesterday's emergency appointment with psychiatry. Gavin has been extremely lethargic for the last couple of weeks. We were pretty sure it was tied to his Clozapine (the antipsychotic used to treat his Schizophrenia) but since nothing has changed in over a year, it also didn't make sense. We met with his psychiatrist yesterday afternoon. After they heard what was going on, they got us in right away. Unfortunately, they were also about 2 hours behind and that sucked but on the bright side, we ran into one of Gavin's old friends and his…

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June 20, 2018

Autism Parenting Woes / Gavin

When your child has no filter

One of the toughest lessons I've failed to teach Gavin is that you don't need to say out loud, everything that pops into your head. This has been an ongoing struggle for most of his life and no matter how many times I've talked to him about it, nothing ever changes. This isn't necessarily unique to Gavin. I've heard from countless Autism parents over the years, who face the same struggles. I'm not in Gavin's head and while I can somewhat predict what he's going to say, I can't say that I understand why he says it. At best, the thoughts he says outloud are mildly inappropriate and said in the privacy of our home. At worst, the thoughts he says are horribly inappropriate and said in a very public…

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June 20, 2018

Gavin / My thoughts

The single biggest reason I’m worried about our emergency psych appointment today

Lizze and I reached out to Gavin's psychiatrist's office because we're growing increasingly worried about his worsening level of lethargy. I mentioned eariler that they were our first stop because if this is medication related, it's probably the Clozapine. Since they manage the Clozapine, it makes sense to begin there. My email was returned within minutes and we got an appointment right away. I'm not sure if that's just convenient or both convenient and scary. It's impossible to get into Gavin's doctor and we literally received an appointment for the same day, scheduled for about an hour after I sent the email. I don't think there's anything medically significant to worry about there is still one reason to be very concerned. We could end up having to either cut back…

5 Comments

June 19, 2018