It's not even 7AM and we're sitting in the lobby of the surgery wing on the 4th floor of Akron Children's Hospital. This is an appointment that we're a bit…
Tonight was not good to Gavin. Poor Gavin got sick after dinner and was absolutely miserable until he finally fell asleep. Shortly after eating dinner, he got what he describes…
I wrote about frustrations and explanations for why guardianship hasn't been completed for Gavin. I was explaining how things keep coming up that force us to reprioritize everything. See: I'm…
Gavin had a really stressful day yesterday. He did great with having to get more bloodwork done but it took a lot out of him. As the day went on,…
Let me tell you something. Today has been one of the most stressful days I can remember. I spent the last few hours talking/venting to Lizze about everything weighing me…
We just arrived home. Everything went as well as expected. I'll explain what they found a little bit later on. Right now I'm going to be bed. Gavin is taking…
I have been sharing how stressed out and worried I am over Gavin's current immunological crisis. I consider it a crisis because there is a nationwide shortage of GAMMAGARD. This…
We're having to adapt to a relatively fluid situation today. The original plan for the day was straightforward and simple. All I had to do was take Elliott to his…
