It's not even 7AM and we're sitting in the lobby of the surgery wing on the 4th floor of Akron Children's Hospital. This is an appointment that we're a bit…
Today's already not going as planned. I was supposed to get the boys to school, go walking and then take Gavin to Akron Children's Hospital. Unfortunately, things fell apart rather…
I wrote about frustrations and explanations for why guardianship hasn't been completed for Gavin. I was explaining how things keep coming up that force us to reprioritize everything. See: I'm…
Gavin had a really stressful day yesterday. He did great with having to get more bloodwork done but it took a lot out of him. As the day went on,…
Let me tell you something. Today has been one of the most stressful days I can remember. I spent the last few hours talking/venting to Lizze about everything weighing me…
We just arrived home. Everything went as well as expected. I'll explain what they found a little bit later on. Right now I'm going to be bed. Gavin is taking…
I have been sharing how stressed out and worried I am over Gavin's current immunological crisis. I consider it a crisis because there is a nationwide shortage of GAMMAGARD. This…
As we begin the new year, our Monday plans are already being adjusted because of the holiday. Gavin was supposed to get his labs drawn today but I'm not sure…
