We have a conundrum and aren't sure what the right thing to do is. In less than 24 hours, we return to Akron Children's Hospital for pre-testing and consultation in…
I've made some pretty significant progress in regards to figuring out all the Gavin related things I set out to find the answer to this afternoon. There are still a…
As the day has gone on, Gavin's sounding worse and worse. That doesn't mean there's anything to worry about but I worry nonetheless. He's most likely dealing with the same…
It's been a really long day and I'm personally struggling with my depression. The boys, while home sick, felt better as the afternoon progressed and seem to be doing fine…
The temperature in the house had already dropped over 10°F and took us into the 50's. it was pretty fucking cold. We were making the best of things and putting…
Let's cut to the chase and get the good news out of the way. I'm really hoping to get back on track, as we make our way through the weekend.…
I meant to share this eariler but frankly, it still isn't finalized and nothing has actually changed yet. That said, I finally heard back from Gavin's immunologist about the issues…
I've spent the morning on the phone, trying to get ahold of the pharmacy responsible for delivering Gavin's IVIG infusion supplies. I'm not content waiting to find out when his…
