It's now Tuesday, July 3rd and it's been three weeks since we first learned about the nationwide shortage of GAMMAGARD. Gavin recieves at home IVIG every Monday and Friday for…
Before I go into anything, I want to begin by saying that Gavin's echocardiagram looks good. Everything appears to be normal and that's really, really good news. Gavin did really…
It's been a long, restless night. Elliott was awake until well after 1 am, while Emmett woke up with nightmares at some point and climbed into bed with us. Both…
We have a conundrum and aren't sure what the right thing to do is. In less than 24 hours, we return to Akron Children's Hospital for pre-testing and consultation in…
Let's cut to the chase and get the good news out of the way. I'm really hoping to get back on track, as we make our way through the weekend.…
Lizze and the boys are in bed. I'm with my parents and siblings, sitting with my grandfather. This is fucking awful and it's so hard to bare witness to someone…
As the day has gone on, Gavin's sounding worse and worse. That doesn't mean there's anything to worry about but I worry nonetheless. He's most likely dealing with the same…
We're leaving in a few minutes because Lizze has another doctor's appointment this afternoon. It's just a dentist appointment and so it's nothing major. I was able to sneak a…
