Unfortunately, I'm not feeling very well tonight and I think it's my body turning on me because of all the stress. I'm going to make this super quick because there…
We've made it and made it early, thrifty minutes early to be exact. We had anticipated construction but it didn't occur to me that we would be driving through before…
Everything is a go and I'm off to bed cause we have to be up and moving around 4 AM. I'm not looking forward to that at all but I'm…
I need to get you all caught up on Gavin's status and whether or not his scheduled surgery is a go for tomorrow. I couldn't really share anything until this…
So Gavin's medication arrived. We went through the newly received supplies and figured out how to draw up the new solution. Previously, we were using 3, 10cc vials for a…
I was finally able to connect with the person in the legal department at Akron Children's Hospital today, that I needed to speak with. We had a somewhat lengthy conversation…
Gavin's supposed to have an endoscopy and a colonoscopy done at Akron Children's Hospital next week. They consider this surgery and refer to it as such, so I'm doing the…
I've just spent the last three hours on the phone, bouncing between Gavin's doctor, the specialty pharmacy and insurance. I swear to God, if I had hair, it would be…