We have arrived at the Cleveland Clinic and managed to navigate the maze of hallways and corridors to find where we were supposed to be. This is a very important…
Gavin was evaluated this afternoon for PT. Gavin's feet are pretty bad but over all it could be alot worse. He still can't cross his midline and that's a problem. …
Gavin has his PT (physical therapy) evaluation today. So I took Elliott along for the ride to give Lizze and Emmett some down time. Gavin has been on the waiting…
Gavin and Elliott have orientation today. This isn't a big deal for Gavin at this point but it's a bigger deal for Elliott. Elliott has mixed feelings about going to…
Last week Gavin had about 13 vials of blood taken for some extensive metabolic testing. We have received word that some of the initial tests have come back in. The…
Gavin put together this Lego ship. He calls it his Mario Ship. We did a video of this but the audio didn't work for some reason. - Lost and Tired…
Gavin's had OT yesterday. While he was there, the therapist noticed a new symptom that had escaped our detection. We are very aware of Gavin's movement disorder but had not…
Gavin is still sick from the infusion. He is nauseous and cramped. They warned us that this might happen as some people have these types of reactions and some don't. …