It's Monday and that means Gavin should be receiving his IVIG infusion. In fact, it should have already been done. Unfortunately, we're still missing supplies. I talked about this last…
We were able to reconnect with Gavin's MyChart account this week. When he turned 18 this past January, his account was closed and he needed to open up a new…
I fell a bit behind today and wasn't able to get much writing done. We had a relatively quiet day because the boys are still under the weather and Elliott…
I wanted to drop you a quick line to share a bit of insanely good news. Let's be honest, it's been a little while since I've had some really good…
Gavin's having a rough morning. He really struggled to setup his IVIG infusion today. At one point, he ran into what he perceived to be a problem and couldn't work…
Plans have changed for today. Lizze is not feeling well at all and I'll be taking Gavin to his appointment on my own. It sucks when this happens for a…
It's already been an eventful morning, after a long night. When we last spoke, it was about 1 AM, and the boys were unable to sleep. Elliott fell asleep shortly…
I'm not looking forward to this week. We have a huge decision to make in regards to Gavin's medication and I have oral surgery scheduled for this Friday. I feel…
