Just when I thought things were finally settling down and we could catch our breath from all the Gavin drama this morning, Lizze gets a phone call. Elliott is in…
I have a much larger update planned but for the moment, I wanted to let you know how Gavin's orthostatic testing went at the Cleveland Clinic yesterday. Whenever Gavin see…
Gavin is checking all the boxes today in regards to being challenging. We've had one issue after another leaving Lizze and I frustrated. After the issues with his IVIG infusion…
I didn't sleep well last night because my restless leg was keeping me awake. I was unable to go walking because of HOF week. To say I was in a…
One of the more frustrating parts of being a special needs parent is dealing with medications. One of the most frustring parts of dealing with medications is getting them filled…
I was incredibly overwhelmed last night but I'm feeling a bit better this morning. As a result of feeling a bit less overwhelmed by life, I'm able to puts some…
As time goes by, it becomes more and more apparent that Gavin's entire state of being is in decline. One of the most impactful for him, at least from my…
It's been another long night, and I'm just now getting around to writing anything. Mr. Emmett is all sorts of miserable because of his current fever flare, resulting in painful…
