I was finally able to connect with the person in the legal department at Akron Children's Hospital today, that I needed to speak with. We had a somewhat lengthy conversation…
Gavin's IVIG infusion supplies arrived but didn't arrive until dinner time. I had Gavin immediately put his infusion together and get it going. While he was doing so, he began…
It's been another long night, and I'm just now getting around to writing anything. Mr. Emmett is all sorts of miserable because of his current fever flare, resulting in painful…
We've made it halfway through the day, and things have actually gone smoothly. Emmett's back at school, and we're in the waiting room at Akron Children's Hospital for Elliott's appointment.…
It was a long night. Emmett slept until 2 AM before waking up in a panic because his eye was glued shut. I applied warm compresses until I was able…
I've been meaning to write this but the idea of doing so has been too overwhelming. There are a number of reasons for that but the main one is that…
I have a much larger update planned but for the moment, I wanted to let you know how Gavin's orthostatic testing went at the Cleveland Clinic yesterday. Whenever Gavin see…
What a morning it's been. We had meltdowns before school over socks not feeling right and that sorta set the tone very early on. Meltdowns are never pleasant for anyone,…
