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Like we didn’t already have enough on our plate

I received really bad news as Lizze and I were leaving her grandmother’s funeral, on our way to the cemetery yesterday.

Please keep Gavin in your thoughts and prayers this morning

Gavin has now gone more than 24 hours without eating. For someone who loves their life around eat meal of the day, that wasn't easy and it's still going to…

This is a perfect example of why being a #specialneeds parent can be so exhausting, frustrating and overwhelming

We're not off to a good start today. I basically woke up to Elliott and Emmett fighting and it went downhill from there. I could have weathered the fighting but…

It’s heartbreaking to see him like this

Gavin's IVIG infusion supplies arrived but didn't arrive until dinner time. I had Gavin immediately put his infusion together and get it going. While he was doing so, he began…

Each day we have left with her is a gift

Aside from some issues with Gavin this morning, I feel like we've had a pretty good day. After all the drama at the beginning of Gavin's IVIG infusion, it finished…

Here’s how we figured out the legal problems after Gavin turned 18

I was finally able to connect with the person in the legal department at Akron Children's Hospital today, that I needed to speak with. We had a somewhat lengthy conversation…

I think this is best

Poor Emmett has been struggling today. He's trying to decide if he is comfortable going to my grandmother's funeral on Thursday. Elliott and Gavin are a hard no. Emmett has…

The heartbreaking reality of how trauma has seriously impacted one of my kids with #Autism

I've been meaning to write this but the idea of doing so has been too overwhelming. There are a number of reasons for that but the main one is that…