Gavin isn't doing so well right now. I don't have time to go into details at the moment. They are calling this a dysautonomic crisis. He's also experiencing a cardiac…
I spoke with Lizze this morning and things have changed a bit for Gavin. He had another bout with chest pain last night. Akron Children's Hospital has wisely decided to…
I wanted to update you all to the latest information on Gavin. Gavin was actually admitted once again to Akron Children's Hospital. He's currently in the Epilepsy Monitoring Unit(EMU). He…
Please say a prayer once again for Gavin. We had to rush him tk the ER at Childrens due to what appears to be an autonomic crisis. He was laying…
Gavin has been off his blood pressure for only a day and he has already crashed. This afternoon, he had an autonomic crisis. Basically, this means that his blood pressure…
Gavin is on his way to receive his first antibody infusion since his dosage was increased. We don't know how he's going to handle it. He also will not be…
Today Gavin wanted to share his newest custom Lego Creation. This is some type of ship and he's really proud of it. He's practicing right now so he can enter…
Gavin has spent much of the day sleeping. He's acting disoriented and confused. Right now I'm hoping that he is not beginning an autonomic crisis. His blood pressure is probably…