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Gavin did an amazing job this morning

Gavin did a really good job this morning in regards to his IVIG infusion. He got up early and put it together, woke me up in order to check it…

I feel so lost right now

I'm not having a good day today. I'm feeling enormously overwhelmed by everything in my life, and I honestly don't know how much more I can take. The things going…

My day has not gone as planned but I’m righting the ship

The boys got off to school without any issues. We even arrived a few minutes early. We'll see how long the excitement lasts but for right now, things are looking…

I’m emotionally drained today but trying to work through it

I feel really rundown today, but it's mostly emotional. Lizze isn't having a good day at all, but the boys are doing okay. Gavin's been in his room for most…

Such is life when parenting a child with fragile health

Most people will never know, let alone fully understand what it's like to have a child with fragile health. Please understand that if you are among the many who don't…

I’ve been screamed at more times than I can f*cking count today and it sucks

I've had a very difficult day today. I've done my best and my best wasn't even close. I'm really, really struggling at this time and it's more difficult than it…

Guess what we celebrated today

I just wanted to share something we celebrated today. I get that some people might not get the significance of this but it's pretty significant to us. I'll briefly explain…

Gavin forgot something and it’s worrisome

Gavin had his Friday IVIG infusion this morning. Thankfully, the process went on without any hiccups and he actually did a much better job of putting things together. There has…