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We’re waiting to see the doctor and Gavin’s getting hangry

We’re waiting to see the doctor and Gavin’s getting hangry

Gavin's EKG went well and literally lasted only a couple of minutes. We made it to his second appointment of the afternoon and just spent a good bit of time,…

Continue Reading We’re waiting to see the doctor and Gavin’s getting hangry
We’ve just arrived at the @clevelandclinic for Gavin’s #EKG

We’ve just arrived at the @clevelandclinic for Gavin’s #EKG

Gavin and I arrived at the Cleveland Clinic, right in time. Our first stop is his EKG and then we see his new cardiologist immediately afterwards. Lizze wasn't feel well…

Continue Reading We’ve just arrived at the @clevelandclinic for Gavin’s #EKG
Gavin begins Cardiology journey at the @clevelandclinic this week

Gavin begins Cardiology journey at the @clevelandclinic this week

The Cleveland Clinic called on Friday, before Lizze and I left for the funeral. They were calling to make Gavin's Cardiology appointment. The last time Gavin was at his Neurologist,…

Continue Reading Gavin begins Cardiology journey at the @clevelandclinic this week
Gavin’s behavioral problems will ultimately be the end of us getting a night off

Gavin’s behavioral problems will ultimately be the end of us getting a night off

Lizze and I are knee deep in the first break we've had in about a month. Gavin and the boys are at their grandparents for the night. What typically happens…

Continue Reading Gavin’s behavioral problems will ultimately be the end of us getting a night off
Gavin had a massive emotional breakdown last night

Gavin had a massive emotional breakdown last night

Gavin had a complete emotional breakdown while at therapy last night, it came out of nowhere and it a big one. He was playing basketball with Emmett and while he…

Continue Reading Gavin had a massive emotional breakdown last night
A major update on the mass in Gavin’s forearm

A major update on the mass in Gavin’s forearm

Real quick, I wanted to share a bit of good news. We heard back from the doctor today in regards to the mass in his forearm. The doctor sent us…

Continue Reading A major update on the mass in Gavin’s forearm
An example of how repetition helps Gavin learn or maintain skills

An example of how repetition helps Gavin learn or maintain skills

It's been a difficult day because Gavin is definitely struggling but it's sort of a mixed bag. I'll give you an example. I mentioned to him last night that he…

Continue Reading An example of how repetition helps Gavin learn or maintain skills
Gavin’s been freaking out all morning

Gavin’s been freaking out all morning

We have nothing on the schedule for today, aside from the activities that happen every Friday. The kids have school, and Gavin has his IVIG Infusion. Everyone is dragging this…

Continue Reading Gavin’s been freaking out all morning
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