Everything could be fine or it could be really bad. Hes basically been sick for the last 30 days. This is the first time he’s been sick since starting the IVIG Infusions 2 or 3 years ago. While everything may be okay and he’s just sick again, we have absolutely no experience with this.
If he’s not doing better, we’ll probably have to seriously consider taking him to the ER. He’s going to need fluids via IV. You’re not going to vomit from IV fluids because they going directly into your blood stream. It’s the fastest way to hydrate someone.
If you remember when Gavin had his first and most dangerous Autonomic Crisis, it was triggered by vomiting. That was in May of 2012 and he hasn’t vomited since then.
The major concern right know is the weight loss. There are a few possibilities right now being considered. His metabolism may be cranked up too high as a result of his autonomic dysfunction.
In the morning, we are supposed to be taking Gavin to the pediatrician for a special appointment to discuss Gavin’s current health state and recent weight loss.
There was a million things running through my head as I entered his room. I was panicking because I thought he was in pain and for him to be that upset, it had to really bad.
I haven’t written much since yesterday because it’s been pretty crazy over here. Lizze has been in bed most of the day because she’s really not feeling well and yesterday took a lot out of her.
A few minutes before we arrived at Akron Children's Hospital, Gavin sorta slumped over in the van. I got him up to the infusion lab and they immediately got his…