We are knee deep into Gavin’s 14 Birthday and he’s got something he wants to share with you.

Lizze and I are going out to look for a birthday present for Gavin this afternoon.. Guess what’s on Gavin’s list…

Finally. We made progress on Gavin’s “at home” weekly IVIG Infusions

Gavin had his 30th IVIG Infusion this morning at Akron Children’s Hospital. For some reason………..

Gavin would love your feedback on his latest drawing.

Folks, Gavin needs your prayers again tonight….

Our next step is to get him to his rheumatologist. It’s possible that we could be looking at Fibromyalgia, as it’s not unheard of in children and certainly more common than just about anything else he’s already got going on

We’ve been working with Gavin on noticing things on his body that require maintenence and then addressing it, without having to be asked or reminded. An example of this would be trimming his finger nails.