It’s one of those things that I can’t control and so there’s no use stressing out about it. We can still make this a special day for him and have the actual party in a few days.
Please take a minute and wish Gavin a happy birthday… ☺😊
I received a call last year out of the blue from a genetic counselor at the Cleveland Clinic because Gavin’s specialist at The Cole Eye Institute had reason to believe that Gavin may in fact have Jalili Syndrome.
Gavin has more of an adult frame and he’s very weak. For right now, they’re working in strength training and Gavin seems to really like it.
Holy Shit, we actually made to Gavin's OT/PT appointment today This has been such a long time coming and we've actually made it. 😀 We're currently just waiting to go…
Gavin has a really, really big day today. This has been a long time coming and frankly, it’s taken much longer than it should have and that’s my fault. Here’s what’s going on……
Have I mentioned before that I'm a closet photographer? Well I am. Here is one of my latest pictures. Please follow my account on Instagram by clicking here and you…
He’s not doing anything on purpose and each one of these things are accidents. I’ve no doubt that he’s frustrated with himself as well.