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Gavin is such an amazing kid and here’s a few reasons why

I wanted to share why I think Gavin is an absolutely amazing kid and I couldn’t be prouder

Gavin totally owned his IVIG infusion on Friday

It’s been a rough day for me personally and I’m exhausted but not losing hope. Here are a few things I need to get off my chest though and here they are…

Here’s a really important Gavin related update that I’m not sure what to do with

“………When I met with Dr. Reynolds on Monday night, there are some things discussed that I didn’t share. I wasn’t sure if I was going to either, until I realized that this wasn’t anything that probably hadn’t already been floating around in our heads anyway…….” Read More

My head is pounding but I made Gavin really really happy today

My head is pounding and I feel like total garbage but I made Gavin so happy today. It was totally worth it… Here’s what happened…

I have some bad news about Gavin

“…….. Dr. Pattie says and correctly so, that Gavin is extremely well therapized and knows what to say and not to say……” Read More

Gavin’s going to miss physical therapy today

“………There’s no practical way to do both and I had to make a decision…..” Read More

I met Gavin’s new case manager tonight

What this does is help to bridge the gap between extremely complicated patient and the insurance company.

I’m so proud of Gavin :)

Gavin’s come a very long way over the last year and a half and I wanted to tell you about his latest progress