For some reason, today infusion was taking forever and a day. It took so long that it was still going when their Grandma arrived
“As he was getting ready for bed tonight, he started having really bad stomach cramps. The stomach cramps turned into even worse stomach, which turned into nausea. ” Read More
“Gavin has been doing okay today but seems just a bit off. His memory has gone downhill lately and it’s causing him to get frustrated with himself a lot. I don’t know if this is a phase or if it’s just a progression of his regression..” Read More
It’s a horrible feeling when you are powerless to help your kids…. 😦
I ran into Gavin’s room, expecting the worst……..
“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”
I’m way to tired and stressed out to deal with anything getting any worse.
Both Emmett and Gavin are showing signs of not feeling well…. This is going to be an even longer weekend than I had thought