Gavin is getting more and more frustrated with himself over his disappearing abilities. I don't really know how else to describe it. He hasn't necessarily forgotten that he should know…
Gavin had a weird night last night. Right after dinner, I got Gavin's IVIG infusion going. The weirdness started when he decided to stop eating dinner because he thought he…
It's been a really long day, not to mention, exhausting. This is the first time I'm had the time or the energy to write anything since yesterday. Sometimes I have…
Gavin's showing more and more signs of regression. As someone who sees him all day every day, it's harder to pick up on things like this because it's generally a…
The boys and I had a great guys day yesterday. Lizze will be home in a few his from her trip with her Mom, and our guy time will come…
This was the first time that Lizze has been away since our separation. That ended over a year ago, and she's been here ever since. I'm super excited that she's…
Each infusion provides him with an acting immune system for about a week. The timing and space between infusions are purposeful. We want to provide enough overlap that should there be a delay in a single infusion; he will be okay. This buffer of sorts has come in useful on many occasions over the years.
I'm completely exhausted after a long day. I took the boys to therapy, to order Gavin's new glasses, and then to the grocery store. While at the store, I was…