Is it real or is it drama? 

Gavin's been having a rough couple of days, especially at night. In many ways, he's his own worst enemy. He gets himself all worked up and then he can't settle…

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Don’t tread on his routine 

Shortly after we arrived home last night from calling hours, we realized that we had missed Lizze's Mom trying to get ahold of us. Our phone were still on silent…

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How the IVIG infusion went

Gavin's infusion went pretty well yesterday. For some reason, the while process went really fast, and was completed in about an hour. That was really good timing.  Thankfully, Gavin didn't…

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I’m very concerned 

As Gavin begins to struggle more and more with life, I find myself in a position once again, where I'm unsure of what to do.  Yesterday was a bit rough…

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