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Is the other shoe gonna drop?

The day has been tough one. I'm really trying to reduce my stress levels but life doesn't want to cooperate. The boys have been out of control today and I'm…

Here’s what we’ve learned so far today

I'm still unable to reach the nurse who let's me know Gavin's lab results, but I do have something to share in the meantime. I received two followup calls from…

I hate last minute schedule changes

This afternoon has turned into a giant cluster fuck. It's not a huge deal but it is stressful to have constant changes made to our schedule. We were getting ready…

I’m going to make the best of it

Gavin's currently getting his labs drawn and I'm anxiously waiting for him. I'm exhausted after a long night of very little sleep, and that sucks. I can also share that…

I’m incredibly nervous

We head into today, unaware of what it's going to bring us in regards to Gavin's and his ever changing health. It's a somewhat busy schedule today. I need to…

Just because he can speak doesn’t mean he can always communicate

Gavin has been sleeping most of the day thus far. He says he's feeling fine but this is unusual for him. It's really difficult to know how he's feeling because…

I’m not feeling a great deal of energy coursing through my veins

We have absolutely no plans for today. It looks like rain is going to be the theme of the day, and that eliminates any outdoor activities. The above mentioned weather…

My mind is writing checks my body can’t cash…. yet

First a super quick update.. There were some things we had planned for the weekend that we've had to cancel in light of Gavin's current circumstance. It sucks but there's…