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We had some #vaccine related hiccups

I wanted to explain the hiccup with school that we ran into. I mentioned this in a recent post and never circled back to explain. I figured I start the…

How @ProbGenetic is helping us take a MAJOR step forward in the search for answers

If you've been following our story for a while, you likely know that its been on a very long, very challenging journey with Gavin for most of his life. If…

I finally got a good nights sleep

I managed a decent night's sleep and I'm so grateful for that. I'm not entirely sure what I did differently but I feel much more recharged today than I have…

We snuck out for a bit today

We had a pretty good day today. I didn't sleep well last night and my kids were kind enough to let me sleep this morning. I very much appreciate that.…

Last night didn’t go so well

Our first night with an adjusted bedtime did not go so well. Last night was the first night where I moved everyone to a bedtime of 10pm. I mentioned in…

I’m not even sure what to say anymore

I've been struggling today and I'm not entirely sure why. Recently, I've been in a pretty good place because everyone is safe, healthy and doing as well as can be…

I’m starting to write a new chapter in the book of my life

I've haven't written anything super meaningful in a long time. The truth is that a I've written so much over the years that I've sorta burned out. There's something like…

We are getting unburied today

As we're on lockdown, the bulk of our suoies are being drop shipped and because of that, we've become buried in boxes. I guess I hadn't really been paying much…