I’m losing my son to Childhood Disintegrative Disorder
This was a very difficult video to record. I did my best to hold it together but talking about Childhood Disintegrative Disorder and how it's impacted my oldest son, Gavin,…
This was a very difficult video to record. I did my best to hold it together but talking about Childhood Disintegrative Disorder and how it's impacted my oldest son, Gavin,…
It's not even 7AM and we're sitting in the lobby of the surgery wing on the 4th floor of Akron Children's Hospital. This is an appointment that we're a bit…
We have a conundrum and aren't sure what the right thing to do is. In less than 24 hours, we return to Akron Children's Hospital for pre-testing and consultation in…
It's been a long and exhausting day. Gavin has been struggling a bit and I have to tell you, as frustrating as his behaviors are for me, the most overwhelming…
We're getting ready to leave for Akron Children's Hospital after a night of little sleep. Lizze and I have both been dealing with insomnia recently and it's making life even…
One of the things I mentioned that had come to light during Gavin's visit to the Gastroenterologist last month was that Gavin is having a hard time swallowing. Why we…
I mentioned in the previous post that I was in a weird place. I also said I would talk about it in the next post because I needed to sort…
It's been sort of a blah day today. No one's in a particularly good mood and everyone seems to be dragging. I've only even seen Gavin once because he's been…