It's a big day today for a number of reasons. First of all, we're celebrating Gavin's 19th birthday. He actually turned 19 on January 18, 2019 but asked us not…
It’s not like receiving a donated liver or kidney, where his body could reject it. That said, Gavin’s body can struggle to accept the antibodies. He can run a high fever, have seizures, experience anaphylactic shock or an autonomic crises can be triggered.
It's been a low-key day so far. Emmett's not in the best mood because he's not feeling well. He's going to be a handful today but the poor kid is…
About mid-afternoon, right before I picked Elliott up from school, Emmett's doctor called. I had left a message because we were notified that Emmett's results came back but the page…
While I was driving the kids to school this morning, I received a phone call from Akron Children's Hospital. It was the delivery coordinator for Gavin's IVIG infusion supplies. I…
We're finally home from our out-of-town trip to the dentist. I ended up having to take the boys on my own. Lizze was ready to go with us but it…
I can't even begin to explain how overwhelmed I am right now. Lizze is a hot mess and that's not making anything easier. I don't mean any disrespect by that…
It's been an interesting week thus far. Interesting is probably definitely the wrong word because I should say stressful. I've been really stressed the last few days, more so than…