It's been somewhat of a stressful day for me personally. I'm feeling very isolated, which is by design at the moment and that's important. The point is, I feel very…
I know I'm behind on writing and it is what it is. I'm doing the best I can at the moment. I wanted to close the weekend off with a…
Recently, there was a delay in refilling Emmett's antivirals that he takes for his fever disorder. With all that had been going on with Gavin recently, I'd opted to use…
Shaming special needs parents is not okay. It's not. I want to take a moment before we get into this I want to briefly talk about the shaming of special…
One thing being on lockdown for 209 days has showed me is that I can do better at making the best of what we have. It's no secret that none…
We had a pretty good day. Emmett had a rough start and missed his first class of the day but recovered and did fantastic. Elliott did awesome as well. Unfortunately,…
Alright folks, I'm playing catchup here and this will be a rather large update. So buckle up, it's a couple pages. First things first, I feel like we had a…
I met with Gavin's genetic counselor this afternoon, to go over the results of his exome sequencing. This has been a long time in the making I want to give…