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My #1 hope for this week

In a continued effort to remain positive in an otherwise less than positive situation, I thought I would approach this post a little differently. Rather than focus on what hasn't…

Here’s the silver lining to an otherwise very challenging day

Today was full of challenging moments. Some of these moments I rose above and was a good leader for my family. Unfortunately, there were moments where I stumbled and fell.…

There is no cure for what my oldest son has but we keep pushing forward

Eariler today there was a knock at the door. It was Akron Children's Hospital delivering Gavin's IVIG infusion supplies. I guess I didn't realize it was already that time of…

My kids with #Autism don’t do well with change but as their parent, I sure as Hell better be able to adapt

I was already on edge about our trip to the Cleveland Clinic this morning but our plans took a sudden, unexpected turn a few hours ago. First of all, I've…

Gavin’s labs have come back

Gavin's labs have finally come in and it's better than bad news. His Absolute Neutrophil is up to 2.8 from 2.4 last week. This is good news because the numbers…

Gavin’s not doing well tonight

I waited all day and the lab results never came in. I spoke with the doctors office a few times and they have assured me that they will email me…

I totally need to sleep tonight

I'm going to bed early because we're starting our day at 5AM. It's going to be a long morning and I'm not sure how it's going to go. I haven't…

The really cool reason we’re going to the @AkronZoo today

We're off to the Akron Zoo this morning for a special event sponsored by Wishes Can Happen. For those who don't know, Wishes Can Happen granted Gavin's wish last Fall.…