Something Gavin brought up during his visit with Dr. Moodley in Pediatric Neurology, had nothing to do with why he was there. Dr. Moodley was trying to involve Gavin in…
I have a much larger update planned but for the moment, I wanted to let you know how Gavin's orthostatic testing went at the Cleveland Clinic yesterday. Whenever Gavin see…
Once again, Gavin has been shorted supplies for his IVIG infusions. As it stands, he doesn't have enough left to do his next infusion on Friday. Rather than simply take…
One of the more frustrating parts of being a special needs parent is dealing with medications. One of the most frustring parts of dealing with medications is getting them filled…
Gavin's not feeling so well. It began last night with him overeating at the cookout. Gavin has never been one with a functional ability to self-regulate. As an example, he…
I'm sitting in the car, waiting for Gavin to have his blood work done again. As I'm sitting here pondering life, I'm reminded of just how far Gavin has come.…
I had a frustrating moment with Gavin last night. Actually, it was several moments long and I was really, really frustrated. Gavin had finished moving some things around in the…
After taking the boys to school this morning, I'll take Gavin to get this week's bloodwork done. If you're not already aware, Gavin needs weekly bloodwork in order to get…