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It’s a bittersweet blessing

I went back and forth a few times with multiple people from Akron Children's Hospital this morning, trying to figure out the missing lab work thing. I'm happy and relieved…

It’s always something isn’t it

The boys won't be home for a little while and after sleeping in, I'm going to go walking. Lizze is in a great deal of pain today, so I'll be…

The best I can do is always be there for him

It's been a long and exhausting day. Gavin has been struggling a bit and I have to tell you, as frustrating as his behaviors are for me, the most overwhelming…

Yay for #meltdowns

I'm just not a fan of today. The weather is terrible and the kids are struggling but goddamnit if we didn't go trick or treating in the pouring rain. We…

Yesterday was largely positive but it still took its toll

Everyone got off to school okay and it's been a decent morning. Lizze is in a great deal of pain, a bit grouchy, but understandably so. Yesterday took a toll…

Poor Gavin is devastated

Poor Gavin is having a rough morning. He'd been saving up for a $15.00 game on his tablet called Adventures in Mana. On Friday evening, I bought the game for…

Why he’s so excited about this red box

It's a little odd but Gavin has been chomping at the bit to get a new sharps container for the disposal of his IVIG infusion supplies. I say it's odd…

I hate seeing him upset like this

It's been a rough evening thus far, and it's only 6:30 PM. Gavin has had several freak outs since we've been home. A freak out is not the same thing…