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Nothing quite like getting kicked when you’re already down

Life is hard enough but when it decides to kick you when you’re already down, it just sucks.

It’s a HUGE day for us and here’s why

After weeks of stress, worry, fear, frustration, anger and exhaustion, we should finally see Gavin's IVIG infusion medication arrive today. We don't have a specific time but it's supposed to…

We had two close calls with Gavin’s meds this week

We've had two pretty significant issues this week, in regards to Gavin's Clozapine and IVIG infusions. I mentioned previously that there was a issue with Gavin's Clozapine refill and that…

Gavin’s driving me crazy

It's no secret that I'm worried about Gavin for a great many reasons. I love this kid to death and will continue to do whatever I can to help him…

Is Gavin losing his vision or is something else wrong?

We have a super long day ahead of us. It begins with early morning bloodwork and getting the kids ready to spend the day at my parents house. While the…

Yay for #meltdowns

I'm just not a fan of today. The weather is terrible and the kids are struggling but goddamnit if we didn't go trick or treating in the pouring rain. We…

It’s always something isn’t it

The boys won't be home for a little while and after sleeping in, I'm going to go walking. Lizze is in a great deal of pain today, so I'll be…

His EEG is done and Gavin is in good spirits

Gavin's appointment with the Adult Epilepsy Central at the Cleveland Clinic went as well as could be expected. His EEG went fine physically but we won't have any results back…