We've been so stressed out since learning about the GAMMAGARD shortage. GAMMAGARD is the medication used to treat Common Variable Immunodeficiency, of which Gavin has. Basically, GAMMAGARD is donor antibodies…
It was a rough night and a challenging morning. It's a big day and it's made worse by my lack of sleep. That being said, we've made it to our…
Gavin's been undergoing his IVIG infusion for over five hours now and it's still not done. This is not a good thing because he's getting extremely anxious and understandably so.…
As you likely already know, Gavin was scheduled for surgery at Akron Children's Hospital yesterday. Everything went as planned but we ran into a problem. I summed everything up in…
Gavin's a bit nervous but doing well. He's very focused on the IV heading his way and is trying to talk himself through it. He brought a stuffed animal with…
Gavin has now gone more than 24 hours without eating. For someone who loves their life around eat meal of the day, that wasn't easy and it's still going to…
We were able to reconnect with Gavin's MyChart account this week. When he turned 18 this past January, his account was closed and he needed to open up a new…
Gavin's appointment went really well. I mean, we don't know the results but Gavin physically did pretty good. He could follow directions and it took a little bit because they…