Please know going into this post that I blame only myself for what I’m about to share. I’m not proud of this but it’s a pretty big deal and there’s no way to deny the impact this is going to have on my family.
It's been a really long time since I've updated you on Operation Hope. For those of you new to Lost and Tired and our story, Operation Hope is what I've…
I wanted to let you all know that we have e made it home, safe and sound. Before getting into how Gavin s doing and our plans going forward, I…
Gavin is getting discharged this morning. While his condition hasn't really changed, he's not getting worse. We may be dealing with a new baseline now. In other words, this may…
After a few hours in the ER at Akron Children's Hospital, Gavin was stable enough to be released. We opted to reschedule his IVIG infusion so as not to push…
After very long morning, we've finally made it home. Gavin had his appointment with Dr. Moodley and while we have good news to share, I'm uncomfortable with it. Gavin had…
I just arrived to the ER and have gotten settled in and up to speed. My mom picked me and Emmett up and I dropped them off at her house. …
Because of Gavin's autonomic dysfunction, his doctors have him on a very, very strict fluid intact schedule. Gavin's only allowed 2.5 liters of water (only) per day. We carefully monitor…
