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In need of thoughts and prayers today

Please keep Gavin in your thoughts and prayers today

Autonomic Crisis: Change of Plans (08/29/2013)

As we were preparing to be discharged, another doctor came into the room and wanted to talk with us about what was going on. Because they never see anyone like…

This is how we infuse Gavin with #IVIG at home

This is how we infuse Gavin in with #IVIG at home. Complete with pictures and detailed explanations.

Gavin is driving me crazy today

Gavin’s having a rather trying day and it’s taking its toll….

Gavin needs your thoughts and prayers

Gavin’s having another Autonomic Crisis. Please send you positive thoughts in his direction.

We finally made it to the pediatrician

Traffic was horrid and it took me an extra 35 minutes of Autonomic Crisis inducing, stop and go traffic but we finally made it to the pediatricians office.

Please Pray for Gavin: We may have a serious problem

If you remember when Gavin had his first and most dangerous Autonomic Crisis, it was triggered by vomiting. That was in May of 2012 and he hasn’t vomited since then.

When you have to tell your son that he could die

How do you tell your son that he could die? How we’re handling Gavin’s current situation